Hi ladies,
I've posted about this before on the general forum and/or the Pouchitis forum, but it probably makes more sense here.
I had my colectomy last November, with take-down in February 2015. I was doing *great* for the first stretch, and then began having upsets in the 10 days or so before my period last July. It didn't become a regular, like-clockwork problem until November. It seems I get either pouchitis or a manageable obstruction within the 10-day window every month.
I've been lucky enough to ride out most of these hiccups, but I did decide to try Cipro twice. The first time I had immediate side-effects that wore of pretty quickly, but the second time they came on late and stuck around for a while. They included (but weren't limited to) muscle pains/spasms, totally spacing out in the middle of conversations, and crying like a baby for an entire day the day after my final dose. I really don't want to take it again.
Last month I made it without any upsets, and I thought I was in the clear this month, but my period started yesterday and I've been a dry-heaving mess since. My back is killing me, I felt myself almost leak in the night last night, and was up to poop every 2 hours or so. I have no appetite and I'm still belching/gagging even though the BMs have slowed down (and the last one I had was even my definition of "normal" instead of watery). I want to say things are improving, but who knows if it'll last.
I know it's not uncommon for women with IBD and j-pouches to suffer more during menstruation, and I'm wondering what the rest of you do if you fall into this unfortunate category? Are you able to regularly ride it out, or do you have to go on antibiotics whenever this happens? I try to adjust my diet and habits around my period, but I'm admittedly not doing a great job of it (coffee gets me every. damn. time.)
Thanks,
Janine