I have been trying to schedule an appointment for my 14 year old daughter who has had her j-pouch for 2 year now. As of late, she is complaining that she doesn’t feel as though she is completely evacuating so it it leading to many trips to the bathroom & a lot of time spent there. Her surgeon made a recommendation for Duffy & Bracken and I have been trying to schedule an appointment for almost 2 weeks now. They claim that I need to sign an authorization form but have not sent it to me despite repeat calls and the therapist left a note in the computer that she wanted to know what I meant by j-pouch. This did not leave me feeling to confident. I would prefer to use a facility that accepts insurance but I can go out of network if necessary. I am hoping that others on here can give me a recommendation for facility and even therapist as well. Thanks in advance.
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Mount Sinai IBD Center has a lot of resources for IBD patients, and your daughter might get an appointment with a GI that specializes on j-pouch there, who can refer her to a pelvic floor therapist that they work with.
This GI
https://www.mountsinai.org/profiles/maia-kayal
there has been publishing a lot of articles on j-pouch recently, obviously focusing her research on j-pouch. You can find her publication list here, look at the titles of her publications:
https://plu.mx/mtsinai/u/mkayal/
There are few GIs who are also j-pouch researchers in the country ( in the world, for that matter), so she is probably one of the best GIs for your daughter in NYC. I currently do not need to see a GI, but when I will, I will go to her.
Mount Sinai is actually where she goes. Since she is 14, she sees the pediatric g.i. - Dr. Dubinsky. However, Dr. Kayal is my g.i. doctor. She is great- very knowledgeable as well as kind and caring.
I ended up getting an appointment at the place recommended which is now Maiden Lane Medical. Today was evaluation appointment- so I will see how it goes...
On YouTube I was recommended ,Connect Physical Therapy.the lady is very funny and recommends spreading your knees far apart to empty.Ive been trying this and it works so far.
One of her videos is called How to empty your bladder and bowls for better sex for men.
The comments are very funny.
It's for people with colons but might work.