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My son had j-pouch surgery two years ago all went pretty well except he does live with chronic pouchitis.  A few days ago he was very ill with vomiting and diarrhea and ended up in ER.   They say he has adhesions and had a partial blockage.  He rested there without food and feels better.  Last night he ate a little more food and then couldn't go to the bathroom so I am freaking out that things are blocking up.  I don't understand if you have adhesions blocking how I cannot sit here and not worry that it will block up again when he eats.   Some advise and insight welcome I am a very worried parent.  

 

Liz

Tags: Partial, adhesions, block

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what is he eating? soft foods, chew thoroughly and chased with water so its as mushy as possible. not eating when hungry as that will cause one to eat too fast. those are things that helped me. but eventually I had small obstruction surgery and then have moved on to biologic meds paired with an immunomodulator as the chronic pouchitis led my doc to amend my dx to crohns. seems by reading others posts here that some are just dx'ed and treated for same. it will work out. truthfully it seems that the biologic med (Humira) and small dose of methotrexate has largely kept me out of the hospital. I happen to have strictures in my jpouch and those get dilated quarterly and that also keeps me out of the ER.

deweyj

I've had partial blockages a few times over the years and for me it has always been peanuts - ate too many too fast and bam, I'm in rough shape. I always keep some grape juice on hand and drink a bunch when I feel anything close to a partial blockage - it tends to move everything through pretty fast.

Otherwise I avoid grape juice (and wine) since they go right through me. Fast.

DJ H

that's interesting Scott didn't know adhesions kink or twist, but I guess that makes sense. I guess the question is how do you know its happening, and then avoid the culprit foods? I guess to my mind its not too different from contending with a stricture long term, but that's to my mind.

Christine, my strictures were diagnosed during a pouchoscopy. MRE is also a reasonably good test or so ive heard, that might also be of help especially further up?

deweyj

I think if you're feeling fine (and don't have a stricture) then food choices won't cause a blockage. If you have some discomfort, and have had trouble in the past, it might be wise to alter your food choices (and perhaps stop solid food altogether) until the discomfort passes.

Blockages are not universal. Most J-pouches never get an obstruction. Once you know you're prone to them you have to adapt, but otherwise just eat food.

Scott F

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