You should also post this on the 2 FB jpouch pages.

Sue

I have... Thanks

I searched on Facebook and was unable to find this page- would love to join. Any ideas on how to find it would be great! Thanks!

http://www.facebook.com/groups/ParentOfJPouchers/

Thanks!

I have joined but don't know my way around it yet. Any mothers with kids who have jpouch? It's been 10 months and my son life has changed. He still wakes up with accidents and don't go out or like to walk cause he feels pressure and always has to go. He is home school due to him not feeling ready and it's gonna be a year. Any help or advice? He is on Colestipol. Loperamide and Metamucil.

I hate hearing that he's having so much trouble. It would be concerning to still have nighttime accidents after 10 mos. What does your surgeon say? Our daughter struggled for a month or two with that, about as long as her surgeon said it would. If they used the double-staple technique it can really stretch their bottoms and it takes time for the muscles to strengthen back up.

Of course, with the constant pressure it may be something else - cuffitis maybe? Any other symptoms?

Steve

We have 37 parents connected now. It is so much easier to trouble shoot our munchkins with so many different points of views and some veterans some awaiting stage one. I am really happy I was able to find so many other parents!