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Just curious if this is common as I've seen a few posts about it.

I am in remission right now and never had pain meds since I didn't even realize what I had was pouchitis.

However, when it was super bad, I did go to some tylenol and codeine we had left over from some other issue hubby had at one point, lol. Yes, I was hurting sooo bad and desperate and OTC pain meds weren't touching it.

I felt guilty taking it and normally just sucked up the pain not knowing what I had going on was legitimate....if that makes sense. I've just gotten used to taking the pain.

Anyway, is it not unheard of to take pain meds for pouchitis? I just always hesitate to ask for them but it would be helpful to me to know if it is a reasonable request.
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For most of us pouchitis is quite treatable. Most important, I thinki, is to make sure you're doing everything possible to get it under control, and keep it under control. I haven't had the experience of needing pain meds for it, and I guess it could get that bad, but that may also be a sign that something else is going on, or the treatment isn't working.
Opiates for pouchitis are generally to slow the gut/treat diarrhea, not for the pain. They do help with the pain, by slowing the gut and any cramping that might be going on. The pain of pouchitis is probably better treated by antispasmodics, not pain medications, because of the type of pain involved.

This is one of those "depends on the situation" things, and should be decided on a case by case basis. I think if your doctor understands the type of pain you are in, he would be better able to decide how best to treat it. It is not the same as most pouchitis cases are treated with antibiotics.

On the other hand, there is no need to feel guilty for taking some codeine when you are suffering and want some relief. I think most people do the same, and there is no harm in it.

Jan Smiler

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