Hi..so I am waiting now to see how I can afford stelara because I'm on Medicare. I'm having my doubts that I will qualify for assistance so after 33 yrs as a j pouch gal I'm thinking let's just get the ileostomy & start feeling better again. My rectal & anal pain is unbearable. Now using difenpine ointment 3 x a day which spikes headaches & my cramping & pouchitis is out of control. Ulcers in j pouch won't go away. I'm cipro resistance now..doesn't seem to work. Entyvio after 2 yrs stopped working so that's why dr thinks stelara. Stage 1b ductual carcinoma breast cancer too so being on more biologics scare me. Plus..it just seems like I'm full of toxic meds! I really wish I knew what to do. My bottom pain is so severe I feel like I could pass out while having a bowel movement. Just so extremely exhausted. Sorry just needed to talk. My family have been great. They want the best for me..but I don't show it to them but I'm petrified that the surgery is a tough one that something could go wrong. 13 abdominal surgeries scar tissue galore! I'm sure surgeon will have to remove alot. I'm 62 yrs young!! I'm tough..but scared.
Original Post