Tonight, Sept 5, I am in absolute agony: up in anus and J pouch, around my waist, down my legs, front of abdomen++. Have so much pain and nausea, don't know what to do with myself. I have a friend visiting and we have done a lot of shopping/walking etc. As soon as I start walking or doing much, get this pain around my waist, down my legs, around front of abdomen and in my anus++.
Have had problems ever since passed out in grocery store last Sept., and had terrible pain around my waist. Then they found lesion on 12th rib, thought it was cancer, but was OK. I have never found out exactly why my waist hurts so much and swells. It starts as soon as I start walking a lot or stand for long.
Think possibly have a fissure as it feels like there is a 'crack' upside my anus. Feel like I need someone to "hold my butt up" it aches so bad. Know we have done tests and tests. I know sometimes it takes a long time to find out what is wrong with me. From 1994-1999 had so many problems but knew I was toxic so kept pushing the doctors. Final test showed that my J pouch staples had come loose and was eliminating from two places and was toxic. They then redid my J pouch, Had I not insisted they check further, I probably would have died.
Have to do something as can hardly stand the pain around waist, pain down legs and in anus and up inside my J pouch..
Had my original J pouch done in 1984. Anyone got any advice for me. Having problems getting into gastro doctor. Did have an endoscopy in Feb and no pouchitis.