I am about 18 months post a 1 stage J pouch operation. I have always had varying levels of pain after a BM and would like to know if anyone else has had this problem and have any tips. I have had all sorts of tests with no clear diagnosis. I don't have a fissure, I just have an internal stinging sensation around the exit after a BM. Any feedback would be helpful.
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Two years post op and this is my continual largest complaint. I do have chronic cuffitus with ulcers in the Ansl transitional zone all the time. If no inflammation maybe some creams line desitin or even prescription rectiv can help.
Jeanette, having chronic cuffitis what did they put you on to try and control it?
Have you tried Calmoseptine? It works for me for light soreness near the rectum associated with a BM. Unfortunately for me, only opiate pain killers or overdoses of Tramadol work when the pain ramps up past the mild stage.
One of the things that the large intestine does is to recycle acids, so your stool is more acidic now as it exits. Not to mention that with many people with a pouch, the BM exits under more pressure than normal, creating a friction "burn."
There is also the possibility of cuffitis and nerve damage, but those things would not be normal for most people.
One of my problems, I think, is that I used hydrocortisone cream for years before my surgery, when I had UC. I had not heard of Calmoseptine, and it was the nonly thing to relieve the stinging and itching in the rectal canal. Unfortunately, it thins the mucous membranes and makes the nerves closer to the surface. It should never be used as I used it. Stupid mistake. I think that is a major aspect of my BM-associated pain, but my Dr. disagrees.
One of the things that the large intestine does is to recycle acids, so your stool is more acidic now as it exits. Not to mention that with many people with a pouch, the BM exits under more pressure than normal, creating a friction "burn."
There is also the possibility of cuffitis and nerve damage, but those things would not be normal for most people.
One of my problems, I think, is that I used hydrocortisone cream for years before my surgery, when I had UC. I had not heard of Calmoseptine, and it was the nonly thing to relieve the stinging and itching in the rectal canal. Unfortunately, it thins the mucous membranes and makes the nerves closer to the surface. It should never be used as I used it. Stupid mistake. I think that is a major aspect of my BM-associated pain, but my Dr. disagrees.
back in my UC days i used Neosporin, still do for butt burn days and its better than anything else i have used.