I've been posting to our site for many years and have so appreciated people's advice. Like many of you, I've have my share of issues. In Sept. 2012, I was diagnosed with Crohn's which was based on the fact that I developed a fistula (no granulomas). I've never had urgency, bleeding, or constant trips to the bathroom. I go no more than 3-4 times a day. I teach all day long and never need to use the bathroom. I have no problems with foods.
I spent 28 days in the hospital, was on Remicade for 2.5 years. I did very well on it until I built up antibodies and was taken off of the drug. The only meds I take are Cipro and Hyoscyamine . Now I seem to be feeling some of the same symptoms that occurred before my hospitilization. I wondered if anyone else has experienced anything similar. It's a very strange gurgling sound, almost like a draining sensation followed by pain, usually on the edges of my belly and terrible pain in my lower back. Sometimes my husband can hear it. Don't think I'm crazy, but the sensation happens when I exhale. It doesn't hurt when it happens, just after. I also have occassional sharp spasm-like pains in my vagina. My GI doc said it was my small bowel expanding and contracting and didn't seem concerned. My colorectal doc didn't seem worried either. The issue is, after 20 years with a pouch, bilateral hip replacements, numerous hospital stays, almost constant pain, I'm a nervous wreck ALL of the time. My mind is consumed with fear and anxiety. I'm on Xanax and I can't imagine how I would function without it. I'm not a baby and hate feeling this way. Anyone have any thoughts? SO appreciated.
