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...still having complications.

So to recap for anyone not following the story, recently in the hospital after takedown:
1) Paralytic ileus, a.k.a. intestinal blockage from bowels not waking up properly after anesthesia - AWFUL symptoms, lasting a couple weeks.
2) Infected abdominal abscess & fluid build-up requiring antibiotics and insertion of drainage tubes, lasting another week and a half.

24 days in the hospital altogether, released a week ago.

And now...

Felt abdominal bloating and pain (tender to the touch) a couple days after my release, noticed it didn't move or change for three or four days even though I was passing plenty of stool and gas, so thought it was another abscess. Called it in.

Yesterday's CT (oral, rectal, and IV contrast - checking for leaks as well) showed trapped air in my abdomen where it doesn't belong along with inflammation around my uterus and Fallopian tubes. The CT did not show any leaks or source of the air, though CT's are not necessarily complete pictures of what is going on, and leaks/bowel perforation are the most common cause of air in the abdomen.

Doc's orders: immediate antibiotics to head off any infection and a repeat CT in a week to see if there is any change, followed right after by an appointment with my surgeon. The hope is that my body might absorb the air on its own. If I experience any sign of infection, I'm to head straight to the UCSF emergency room.

I really don't think I have a perforated or leaking bowel, so I was confused on what it could be. After doing some research, I read about this phenomenon where if a patient is on high doses of steroids after surgery (which I was), then sometimes when the drainage tubes are removed from the abdomen, that tract doesn't close up right away like it's supposed to since healing is inhibited, which would provide a pathway for air to enter into the abdomen. I'm thinking that makes the most sense since this didn't happen until a few days after the drains were removed, and that incision took several days to close up. At least I'm hoping that's what it was instead of something more dangerous like a leaky bowel.

Hopefully it will resolve on it's own. In the meantime, it's uncomfortable/painful to move around very much (feels like a lot of painful gas that won't pass), so I'm spending a lot of time in bed. An additional three weeks of work has been ordered. (Otherwise I'd be going back a week from Monday, on the 21st.)

Anyway, just keeping you all posted. (A girl just can't catch a break!) Still staying positive, though, and trying to remain patient. Looking forward to the day when these post-op complications are behind me and I can just focus on my j-pouch and athletic rehabilitation. I know that this all has nothing to do with my pouch and that once I get through all of it (which all could have happened after any type of abdominal surgery) I will be a happy j-poucher.

Thanks for all of your continued support, everyone.
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You deserve to catch a break so fingers crossed your body will work this out on its own. I hate to say this but you have been the poster child for what can go wrong. But you have amazing positive attitude and I have no doubt that this will all be a distant memory very soon and you can get back to life. I know it hurts but maybe try to go for short walks throughout the day to get that air worked out if that's even possible. Hang in there!! Smiler
quote:
I know that this all has nothing to do with my pouch


Yes, and they are also issues that will resolve. I had many of the same issues as you and I was also on a very high dose of prednisone pre-surgery and weaned off of it after surgery. I had the same issues with the drainage and wound closure and I had a very bad infection as well, high white blood cell count of 36, fever etc. It's all a pain in the ass but you get through it and ultimately none of this will have any bearing on the actual pouch healing process as you already mentioned.
Thank you for the support, Ladies & Gents.

I'm actually feeling pretty good aside from the air still trapped in my abdomen, which is quite uncomfortable 24/7 - I guess that's kind of contradictory, huh? I will get to see at the CT in two days if the air has gone down at all. I did a little research on it and found out that although these things often resolve themselves in 6-12 days, it can sometimes take several weeks for all the air to absorb, so as long as the air pocket is getting smaller, I'll be happy. I have an additional month off of work now (paid), so I'm not too concerned.

But anyway, I think if it weren't for that one remaining complication, I would be quite active and ready to resume normal life. (This weekend would be about the six-week mark, which is when diet and activity restrictions are usually lifted.) So I'm just being patient and staying positive while I wait it out. Planning to spend the next month slowly introducing new foods so that I'm on a totally normal diet (even raw veggies!) by the time I go back to work... so that should keep things a little interesting for me.

But my j-pouch is doing well. The antibiotics and Christmas chocolate I've been eating up daily have caused a bit of a "pushing through" effect (almost like a mild diarrhea), but even then number of times per day has remained under ten since I left the hospital. I ran out of chocolate a couple days ago (thank god), and yesterday I only had three bowel movements in a twenty-four hour period. Very promising!

I can't wait until this final issue is resolved and I can get back to my life! Again, thanks for the support, everyone!

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