Hi guys, been lurking here for a while so consider myself well briefed but afraid I still have a barrage of queries..… You guys are an inspiration and reading your tales and how you cope certainly makes me feel more optimistic. Anyways…
UK 41yo male and sounds like I will soon be joining the ‘club’. I have had long standing UC which has been well controlled to the point I feel entirely normal and have done for the post 10 – 12 years without meds. Have the routine Colonoscopys etc, and there are now signs of dysplasia, and specifically a DALM.
Doc recommends immediate removal and im aware that this mean full colectomy with J pouch, although because im ‘healthy’, he would consider sub total colectomy if I insisted, but im aware of I would need regular screening.
So questions are
- Anyone had sub total colectomy? With J-pouch I know to expect 6 – 8 bathroom visits a day, what about sub total? Any Urgency with sub total? Im thinking the difference between procedure outcomes might be negligible?
- For pouchers, i hear a lot of comments about bathroom noise. Im wondering if there is something I can request at time of surgery to reduce/eliminate this issue? For example Rectal Sparring, leaving more stump etc. What is it about J pouch that causes the noise?
- Anything I can request to make it easier to pass gas (standing or sitting down I mean). Would it be made easier by keeping the rectum etc
I know this stuff is not normally done for UC, due to the risk of later ‘developments’, and to be honest I am erring on the total colectomy to prevent future worries, but even so I would appreciate any thoughts on the above.
Thanks in advance