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Off Antibiotics; now - nightly incontinence ...

n/an/aMember
After 2 years on antibx., I'm giving it another shot - trying to get off of them. I've been off a week, and feeling relatively OK, but night-time incontinence has kicked in again. I still take Canasa 3/week, and probiotics.

So ... antibx. prevents night-time incontinence, apparently - at least in my case. The question is, since I'm feeling relatively OK otherwise, and my fistula drainage hasn't changed all that much, do I suck it up and continue with my antibx. hiatus with accidents? Or could the incontinence a sign of impending pouchitis - or actual pouchitis which would be an indication that I need to go back on the antibx.?

I don't feel like I can justify being on antibx. forever just to prevent these nightly accidents, but on the other hand ... I can't bear the thought of resuming the nightly routine of waking up to an accident, clean up, trying to get back to sleep, repeat.

Anyone have any thoughts, experiences to share?
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Scott FScott FMember
I can think of two possibilities, with different implications: if the antibiotics were preventing nighttime accidents as a side effect (some can thicken things up or slow down transit time), then other meds that are better for long term use might do the same thing (e.g. Lomotil, psyllium, etc.). OTOH if the antibiotics were controlling pouchitis or bacterial overgrowth, it might be harder to replace that effect - maybe probiotics at higher doses could do it, at least partially.

My preference would be (is!) antibiotics over nighttime accidents, but that's a personal choice. I guess I might feel differently if I slept alone, but I doubt it.
n/an/aMember
Thanks Chris. As an update, it's been over a month now and things have improved. No more nightly accidents. I get up 1-2/night to empty the jpouch - not bad.

I don't know specifically why things have improved, but I've reduced sugars/carbs, take 1-2 peptos/day, take 1 immodium at night, and eat homemade yogurt 2/day.
Scott FScott FMember
I'm glad things have improved, n/a. When you get the best result you can achieve, it may be worth comparing it to how you did on antibiotics. Then you get to make a well-informed decision about antibiotics, based on the actual benefit they provide (if any).

Even that's not a perfect analysis, of course, since all of the things you're doing now might have improved the results while taking antibiotics. Sleeping through the night without interruption, for example.

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