Off Antibiotics; now - nightly incontinence ...

n/aMember

After 2 years on antibx., I'm giving it another shot - trying to get off of them. I've been off a week, and feeling relatively OK, but night-time incontinence has kicked in again. I still take Canasa 3/week, and probiotics.

So ... antibx. prevents night-time incontinence, apparently - at least in my case. The question is, since I'm feeling relatively OK otherwise, and my fistula drainage hasn't changed all that much, do I suck it up and continue with my antibx. hiatus with accidents? Or could the incontinence a sign of impending pouchitis - or actual pouchitis which would be an indication that I need to go back on the antibx.?

I don't feel like I can justify being on antibx. forever just to prevent these nightly accidents, but on the other hand ... I can't bear the thought of resuming the nightly routine of waking up to an accident, clean up, trying to get back to sleep, repeat.

Anyone have any thoughts, experiences to share?

3/17/1312:47 PM

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Scott FMember

I can think of two possibilities, with different implications: if the antibiotics were preventing nighttime accidents as a side effect (some can thicken things up or slow down transit time), then other meds that are better for long term use might do the same thing (e.g. Lomotil, psyllium, etc.). OTOH if the antibiotics were controlling pouchitis or bacterial overgrowth, it might be harder to replace that effect - maybe probiotics at higher doses could do it, at least partially.

My preference would be (is!) antibiotics over nighttime accidents, but that's a personal choice. I guess I might feel differently if I slept alone, but I doubt it.

3/17/132:39 PM

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n/aMember

Thanks Scott - I agree with your two theories. Think I'll test out the immodium first, see how that works out. Perhaps the antibx. have cleared the pouchitis out enough for the immodium to work. Always hopeful!

3/18/134:24 PM

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ChrisBastianMember

Hi I'm new to this site, but what works for me is a nightly dose of Metamucil, 2 panadine forte 4 lomitol and 2 gastro-stop's
I still get up through the night but once a night is better than 3-4 or the dreaded accident
good luck

6/4/132:32 AM

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n/aMember

Thanks Chris. As an update, it's been over a month now and things have improved. No more nightly accidents. I get up 1-2/night to empty the jpouch - not bad.

I don't know specifically why things have improved, but I've reduced sugars/carbs, take 1-2 peptos/day, take 1 immodium at night, and eat homemade yogurt 2/day.

6/4/137:11 AM

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Scott FMember

I'm glad things have improved, n/a. When you get the best result you can achieve, it may be worth comparing it to how you did on antibiotics. Then you get to make a well-informed decision about antibiotics, based on the actual benefit they provide (if any).

Even that's not a perfect analysis, of course, since all of the things you're doing now might have improved the results while taking antibiotics. Sleeping through the night without interruption, for example.

6/4/138:38 AM

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