I am looling for some suggestions of an excellent GI Doctor(s) or practice and hoping they specialize in Nutrition Therapy. If they do not do both, I have no problem finding another doctor who works with Nutrition.
I have had a J-Pouch since Jan, 1994 and have had Pouchits many times although I currently do not have that according to my doctor. I had a CT Scan that came out negative so I do not have Crohn's Disease and I have another GI who is giving me the Hydrogen Breath Test.
I am actually hoping they find out what is wrong because so far, all my tests are negative.
But I have had terrible problems with Gas and Bloating.
Below is an earlier posts.
On earlier posts, I thought that my problems were related to Rice Milk but now that is not the case. Last month I was tested for Crohn’s Disease and I had a CT Scan with dye and that came out negative. I don’t have Pouchitis at the moment. But one thing is certain, something is not right with me and I have been having these problems off and on, more on then off, since this past April.
My symptoms are Excessive Gas, Bloating, and Stomach Pain. I have to pass Gas just about every hour. Even after I am able to pass Gas, I know there is so much more inside but it is not ready to be released just yet. That is so frustrating.
I get these symptoms no matter how much or little I eat or even what I do eat. I take 4 Beano’s before I eat and then with food, I will take Digestive Enzymes. In between I will take Activated Charcoal and also I have a script for Dicylomine. I sleep with a heating pad on top of my gut. Still, symptoms never go away. I wonder if doing this is doing any good at all? Does not appear to be.
So I saw a different GI that I had seen before and I am scheduled for a 3 hr. breath test next Wednesday to determine if I have Bad Bacteria. I had this test done 2 years ago and that was negative. I had blood tests taking 2 days ago and my doctor called me this morning telling me the blood work was normal.
I will also have to provide the lab a stool test. One will test to see if I have C Diff (I suggested that) but the doctor does not think that is the case with me because he said without a Colon, the odds are against me having that. I can’t remember what the other two stool tests are for.
BUT ONE THING IS CERTAIN, SOMETHING IS NOT RIGHT WITH ME AND TO BE HONEST, I AM HOPING THEY FIND SOMETHING SO IT CAN BE TREATED WITH ANTI-BIOTICS. I JUST WANT TO HAVE A LITTLE BIT OF COMFORT OR SOME NORMALCY IS ALL. I WILL EVEN SUGGEST AND ASK MY GI IF I AM A CADIDATE FOR THE FECAL TRANSPLANT?
HAS ANYONE ELSE HAD SIMILAR PROBLEMS OR DO YOU HAVE ANY SUGGESTIONS THAT I CAN SUGGEST TO THE DOCTOR WHEN I SEE HIM NEXT WEEK?
THANK YOU
Rocket
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