Now Hospice Patient...

Oh Josh,

My heart breaks for you and everything that you have been through and are still going through...is there no hope? Is there no one else who can intervene? Is there not a doctor anywhere who can fly in and rescue you from this death sentence? 

Have you (and I know that this may be a dead end but...) tried to contact Dr Cohen in Toronto? He is semi-retired now but may have something to say/do or suggest...can this possibly be it?

Email me or PM me and I will call him and see if he is still active is any way at all.

My heart goes out to you...hang in there

Sharon

Josh,

I messaged Dr C in Toronto (I no longer know if I will get an answer from him due to part time retirement) but I extrapolated a bit on your situation and asked him to get back to me...If nothing else, to review your case and see if there is anything left to be done.

Maybe it is just a "hail Mary" but still is worth a try...

Hang in there kid...

Where is the hospice? In southern Fla? If so, I will be out there in 1 month and come out to see you.

Do not let go.

Sharon

Words fail me Josh. I am so sorry that things seemed to have snowballed into this dire situation. I know you have had some extremely challenging issues, but it completely astounds me that they were unable or unwilling to gain access for an IV line for nutrtion. This makes me sad and angry, which helps you not one bit. But, I don't know what to suggest, since you have been to your primary MD and the ER

Jan  

I am so, so sorry to hear of your situation.  And very upset to hear of your treatment.  My thoughts will be with you.

Josh,

Are you still out there? Are you still hanging on kid?

Please do not give up the good fight...

Sharon

Josh

i am so sorry to hear of this. Having our issues is one thing, but poor care is quite another. I am my own advocate and have to be. No one understands the care required by us and we learn to do our own research and tell doctors how to treat us. I have been pronounced dead and wished I had stayed that way and yet I'm still here. I have more bad than good days and silently suffer. I truly wish you had someone speaking on your behalf to stop this before it started. You truly are being heard. Physicians should join this site if to just have a tie understanding of a day walking in your shoes. To learn and treat patients not their disease. I'm hoping you are comfortable and no longer suffering and hospice is caring for you well. May God help you through this and know you are never alone. ��

Josh,

I just got an answer back from Dr Cohen and he wants to review your file...are you still there???

Please answer me so that we can make arrangements.

Sharon

Sharon, have you sent Josh a private message?

Jan

How?

I have never started a PM before...

Just click on Josh's screen name, and in the pop-up there is an option to start a private message.

Jan

ok...Just figured it out...I do not know of any other way to contact him...

Sharon, when I click on his screen name, his email address also appears for me. I don't know if that is because I am a moderator, but take a look and let me know. If you can't see it I will send him an email message to review this thread.

Jan

I sent Josh an email to check this thread.

Jan

Thanks Jan

Has anyone heard from Josh? I am simply dumbfounded, shocked and so saddened by his post. I'm hoping that he is going to get to see another doctor? Josh, if you read this, please please don't give up, please get a new doctor from somewhere else, a different hospital entirely, to review you ASAP. Please don't give up. xxx

Any news or updates on Josh?

No, none.

I emailed him directly but received no response.

Sharon

I just read this thread.  I cannot believe this day in age nothing can be done. I hope Josh got some help and he's recovering and that's why he's not posting. So upsetting. 

I've been thinking about Josh every day since I read his post and I can't tell you how heavy my heart feels when I think about his situation. I'm hoping he hasn't responded because he's not able to right now but will soon. All we can do is hope.