Hello,
I have tried all the antibiotics which are not working. I am now at the point of trying humira or remicade(which failed when I had colitus). Has anyone had any success with either of these for poutchitis? Thanks.
Eric
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Sorry to hear about your problems with pouchitis. I have been lucky. When I do get an episode - 12 to 14 days of Flagyl does the trick.
I take probiotics as well. I take one capsule of Culturelle in the morning and one small bottle of DanActive in the evenings.
I take probiotics as well. I take one capsule of Culturelle in the morning and one small bottle of DanActive in the evenings.
Have you tried 6 mp?
sorry to hear...you might have what dr. shen at c.c calls resistant antibiotic pouchitis..i know he has a protocol for that...what did not work for you with u.c does not mean it might not work for pouchitis(if pouchitis which i am assuming is your diagnosis)go for it if dr recommends..
2 doses of remicade gave me a three year remission. I would give diet and fecal transplant a try before using any of this stuff? I'm also now out of options but so far doing well.
When I asked our surgeon about inflammation returning after cuff removal he said ' not possible'. How can they tell you have active inflammation? Is it in your pouch or where you were hand sewn? What are they doing for you?
Eric, can you provide a list of the antibiotics that you've tried? Did any of them ever work for you or did they stop working after a certain period of time?
Have you tried budesonide ?
Have you see the discussion on the thread "PostDiff IBS" about enemas using VSL#3? It might be worth discussing with your doctor.
"IBS" or "IPS" symptoms are similar as Pouchitis but there is no inflammation. I don't understand why BUT they treat IPS with the same antibiotics so if this treatment is working for IBS/IPS then it might work for Pouchitis.
In the studies I've read about IPS it is a condition of the pouch that is treated empirically as there isn't enough people that have it or enough interest, in my mind, to study it. We all have some inflammation in our pouches and they don't know if the mucosa in IPS sufferers is the cause or not.
Sorry if that doesn't make sense. I just thought you might like to read that thread.
"IBS" or "IPS" symptoms are similar as Pouchitis but there is no inflammation. I don't understand why BUT they treat IPS with the same antibiotics so if this treatment is working for IBS/IPS then it might work for Pouchitis.
In the studies I've read about IPS it is a condition of the pouch that is treated empirically as there isn't enough people that have it or enough interest, in my mind, to study it. We all have some inflammation in our pouches and they don't know if the mucosa in IPS sufferers is the cause or not.
Sorry if that doesn't make sense. I just thought you might like to read that thread.