Not quite sure..

Love the title of your posting!  "Not quite sure...."  As far as I'm concerned, this could be the mantra of the medical profession.  When it comes to my J-pouch experiences, my doctor(s) give it their best shot......sort of a process of elimination!  If things aren't resolved with their first effort, they move on to the next, etc.  So  we are not the only ones who are "Not quite sure"!  I've learned to practice patience and to slow down my expectations for quick resolutions to J-pouch challenges.  Fortunately,  my docs do seem to find solutions eventually!  I still hope for this to happen sooner rather than later!  Best wishes to you! 

If it's pouchitis, why not just get treatment started? Also, why do you think it's chronic pouchitis rather than plain old pouchitis? If a round of antibiotics doesn't work that might be a better time to search for an alternate diagnosis.

Let's call that frequent pouchitis rather than chronic pouchitis. I wish I got two months off between treatments!

There are a couple of things you can do that might reduce your pouchitis frequency. VSL #3 DS seems to have exactly that effect (preventing/delaying pouchitis) in clinical trials. The other thing that helps *some* people is significant reduction of carbs (starches and sugars) in your diet. Good luck!

I hope your insurance covers the VSL (the DS is prescription-only, which activates insurance coverage for some of us). An adequate dose is pretty expensive.

Don't even get me started how I hate this pouch. And now they won't remove it, too big a surgery or even an ostomy. Chronic pouchitis , I'm done! Tired of meds, If the surgery to remove it is so awful then they should tell you upfront. I hope this is just a passing issue.

No they r not removing it at this point, I just wish I stuck with the ostomy from the start.