Skip to main content

So I freaked myself out and read something on my facebook J-pouchers group about women's fertility after surgery. I was only 20 when I had it so I wasn't thinking about having babies. But my mom asked the doctors if it would affect anything there and they basically said no. Now I'm reading we can't get pregnant the normal way because of all the scar tissue. Why am I spending all this money on birth control? Is that screwing me up too? Now that I'm 25 a baby seems a lot more part of my future and I'd adopt, totally, but I want to experience being pregnant at least once. That miracle of life, I want to experience it. Not right now, but sometime. Is it really one in ten women with a J-pouch that get pregnant the normal way or did that girl pull the quote off some second-rate website? I'm freaking out!!
Original Post

Replies sorted oldest to newest

You won't know until you try. I never had problems and it is all very individual. Even your doc can't tell you whether you will have problems. People have problems regardless of surgery, perfectly healthy women. if having kids is really important to you, you may want to try sooner rather than later. Fertility is greatly affected by age and it may take longer than you think.
For what it's worth, one of the surgeons I consulted with told me that the pregnancy rate is identical between women with j-pouch and without -- IF you take into account fertility treatments. So, in other words, it's true that you might need to use fertility treatments, but in the end you're just as likely to be able to get pregnant somehow as someone who hasn't had a few abdominal surgeries.

Like everyone else has said, you really can't start worrying until you try.
I totally get where you are coming from. I had my surgeries when I was a young teenager (14) and I don't think they ever told me about the infertility issues. Its also possible I didn't think of it because I was so sick and desperate. In either case, I always planned on having one or two kids but didn't seriously think about it until I got engaged to my husband and started to read about the statistics. Needless to say, I had a serious meltdown when I saw the numbers. My husband pointed out to me that it was out of my control anyway (I had a perforated colon). This probably also puts in the the worst scarring category too. Being the OCD type of person I am, I chose my graduate program based on their insurance coverage for IVF. Thankfully I got into a great program with full coverage for IVF and I am planning to pursue it once I settle in. I have been off bc for 1.5 years but I am not in a huge hurry because I am still only 27. I am thinking about seeing a specialist this summer and getting tests to make sure I don't have fluid or any other problems that would interfere with IVF.

I think IVF is something to keep in the back of your mind when you think about jobs and where you want to live. Some states mandate coverage for it and other don't. In my situation (biomedical research), by the time I would make enough money to afford IVF, I would be getting up there in age (35 or so) and I want the numbers to be in my favor as much as possible. I wouldn't mind adopting but its also just as expensive and my husband has medical problems that would make it very hard to qualify and I am not interested in the stress of foster care.
Last edited by LC
I got pregnant naturally with my daughter within 9 months of trying. One year after her birth, I had a large mucous ovarian cyst removed, and the doctor (a fertility specialist) said she was "an act of divine intervention" because of all of my scar tissue. He predicted I wouldn't get pregnant naturally again, and I didn't... But we opted to stop trying and be happy with our one beautiful girl. He did say I was a good candidate for IVF, but we didn't go there.

So it might happen for you. Won't know til it's time to try.

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×