This is a follow-up to the no pouchitis for 9 months post I did a while back. 20 months now as of December 24, 2014. Had an ileoscopy last month. I stayed awake and watched. The doctor thought that it was time to take another look. It turned out that the ends of the pouch were constricting (but I did not know it because I felt fine) so the doctor stretched them which is really quite painful. But the doc said I am OK with no sign of the pouchitis. YAY.
I had my colon removed and an s-pouch built in 1989. I think they went to j-pouches soon after. I developed pouchitis which I had to treat with intermittent antibiotics monthly. Nine months and 5 days ago when I came off the antibiotics for the last time my doc said lets try something new. Since then I have taken a full dose of Miralax (or generic) upon waking every morning, 4 grams of pentasa daily which do not bother me at all, a 4X probiotic pill I buy on Amazon, and one Activia yogurt every morning. Thats it. I drink plenty of water, don't eat nuts, popcorn, or many raw veggies or fruits, and walk a lot. When travelling in some countries I don't find Activia, but I always find some kind of yogurt. I feel great. I am having to watch my weight now because I feel so good. So much better than the 20+ years I was taking antibiotics.
I had my colon removed and an s-pouch built in 1989. I think they went to j-pouches soon after. I developed pouchitis which I had to treat with intermittent antibiotics monthly. Nine months and 5 days ago when I came off the antibiotics for the last time my doc said lets try something new. Since then I have taken a full dose of Miralax (or generic) upon waking every morning, 4 grams of pentasa daily which do not bother me at all, a 4X probiotic pill I buy on Amazon, and one Activia yogurt every morning. Thats it. I drink plenty of water, don't eat nuts, popcorn, or many raw veggies or fruits, and walk a lot. When travelling in some countries I don't find Activia, but I always find some kind of yogurt. I feel great. I am having to watch my weight now because I feel so good. So much better than the 20+ years I was taking antibiotics.