Nighttime leaks

You might have pouchitis, or possibly a GI bug. Do you do anything (e.g. probiotics) to prevent pouchitis? Do you do anything (e.g. Imodium or Lomotil at bedtime) to improve your night's sleep?

I eat yogurt everyday, haven't tried probiotic supplements yet because they never did much for me when I had UC, but maybe now they'd be different? I wouldn't know which strain to try first, tho. I haven't tried anything other than meditation before bed yet - is Lomotil prescription or OTC? I'm so psyched to be off meds for the first time in 20 years I tend to not think in that direction, but I probably should start!

VSL #3 DS is a potent-but-expensive probiiotic that has been shown to help prevent pouchitis. The DS (double strength) is prescription-only. Lomotil is prescription-only, but Imodium is OTC.

Other probiotics others have had some success with are Culturelle, PB-8, Align, Florastor. I've tried most of those without much improvement in function. The amount of probiotic you get in most any yogurt is miniscule in comparison to a supplement.

Imodium (loperamide) is used frequently as a maintenance treatment for high output. However, if this is pouchitis, it probably won't help much. The fact that you are experiencing new symptoms points to pouchitis.

Jan

this is actually eye opening to this old jpoucher. in the past i never identified pouchitis with nighttime incontinence. but two months ago i began to have routine nighttime incontinence and i couldn't figure what the hell was going on. i mean i have had incontinence periodically but it was episodic not never ending and this was happening for 2 weeks, i finally decided to try some flagyl and bam, it stopped immediately. as my doc and i discussed over my recent dilation pouchoscopy (cooler than chatting over coffee) she said that my likely ischemic caused pouchitis might very well manifest differently for me. nb: this ischemic pouchitis is presumed to be from my marathon training, which is now over, so we shall see if this can calm forthwith. longer story is that in hindsight just before my very first full marathon in jan 14, i was also experiencing regular nightly accidents but i didn't identify the pouchitis then. BUT as ive read here it seems for many that nighttime incontinence seems to be a sign of pouchitis. interesting.