NIghttime Leakage

I take 2 Immodium at bedtime and that has taken care of it for me.

I have tried immodium also, but find that I am cramping a bunch the following day.  Do you experience this??

Becky, perhaps a smaller dose, or you could try Lomotil. I take one Lomotil at bedtime. Other things to try include a spoonful of peanut butter at bedtime, and perhaps kegels. 

If I start to get nighttime leakage that's a sign of pouchitis for me.

Is Lomotil over the counter??

Rx only.

For me, Immodium has worked fine, never any cramping.  I also do kegels every day-not as often as in the beginning, about 5 sets of 10.  I am also only a little over 7 mos. from takedown.  The only other problem I have is gaining weight.  My primary care doctor saw me today and said to get some fat on me.  I really need to look at healthy ways to get that going.  My diet has always leaned toward less fatty foods in general, especially since my husband has to lose weight!  

Yes, I have done Kegels for years... has worked amazing until the past few months as I have never experienced this nighttime leakage in the 13 years that I have had pouch. 

Becky,

Scott F often mentions that this is a first sign/symptom of pouchitis. I was respectfully disagreeing with him last year when I started having this problem of nighttime  leakage. Otherwise, my pouch was fine. I came here looking for answers and didn't think I found a solution. More than 6 months later I had a CT scan  just prior to a surgery (unrelated to my jpouch). My colorectal surgeon came to visit me after my surgery and let me know she saw really bad pouchitis in my pouch. So there you have it, Scott was right! For me I guess I had simmering pouchitis without really knowing it. Nighttime leakage was my only symptom. Went on antibiotics for a few months, and things are back to normal again. 

21 year-old pouch still going strong!

Hope your problem gets resolved soon,

C-jay

p.s. Scott knows stuff 

I have cuffitis right now and deal with nighttime leakage. It helps to not eat late and to wear a pad in your underwear. Also, my leakage is worse f in extremely tired and sleep through the frequency and urges. It can actually be a relief also Bc at least my pouch is getting emptied if I'm having trouble emptying it. 

it will be 1 year next month since my takedown . i have always incontinence on most of the nights since then.i was diagnosed for mild pouchitis with pouchoscopy .My doctor prescribed me VSL3 and  canasa suppositories .it worked for couple of weeks but then stopped working .i do get couple of weeks when i dont get any leakage but then it starts again .usually i think it happens when i am constipated in day or when i sleep after a  super tiring day.I don't know how to handle this .its very embarrassing .

Nish, pouchitis is usually treated with an antibiotic like Cipro or Flagyl for a couple of weeks. Have you ever tried that?

Sorry correction to the above post . It was mild cuffitis . my doctor never recommended me cipro or flagyl . I think I should set up an appointment and ask them for the same . Thanks for the suggestion .

NISH123, you may have both cuffitis and pouchitis now. In that case, antibiotics would be appropriate. Also true if you have bacterial overgrowth.

If it has been a long time since you saw your doc, a new exam is in order. Otherwise, a phone call may get you a script for an antibiotic. If it is ineffective, then you may have more to discuss at a face-to-face appointment.

My GI doc is super busy, so he is very responsive to emails and calls.

Jan

Thanks Jan Dollar . i will call my doctor tomorrow and see what they say . The  problem is that i had my IBD specialist and surgeon in new york .i moved to texas shortly after take down and starting again with a new doctor has been a problem