Nightly Incontinence

Sounds like pouchitis to me. You may need a course of antibiotics for this. Contact your doctor as you should not have to contend with this issue.

Any new meds? I was put on percocet after surgery and that relaxes me. . .too much some nights.

I have that also now first time in 20 years. The cipro and tintazole and protofoam have helped a lot during the day for my pouchitis and strictures, but at night it is still a big problem. No fun is it?

That was me, too...also incontinent during the day....for 13 years. Undiagnosed pouchitis. I had my pouch for about 10 years before the problem started. I was put on Flagyl (antibiotic) for 3 weeks but my symptoms were virtually gone in 8 hours!

Get it checked out. Not sleeping and pooping on yourself is for the birds, on many levels.

Hope you find relief and rest fast! Let us know.

I am on Flagyl and have been on it for a while. Doesn't seem to be helping. My Crohn's is active right now too and the dr is pushing me to have surgery to take down my j-pouch. DO NOT want to do that!!!! Currently on Flagyl, Prednisone, Imuran, and Cimzia injections.

Flagyl didn't help my pouchitis. Cipro did the trick nicely.

I was on cipro for a couple of weeks and it did seem to help but after I came off I'm right back where I started. Dr. looked at my j pouch last week and said it looks fine. GOING CRAZY with this incontinence but do NOT want a colostomy!!!!!

If the Cipro helps, but the benefit doesn't persist when you stop taking it, one option is to stay on it. That's what I do. It's called "antibiotic-dependent pouchitis." I don't know what to say about a pouch that looks fine when scoped, though, assuming the scoping was done when symptoms were bad.

This will sound weird, but the thing that keeps me from night-time leaking/incontinence is a probiotic. If I run out for more than a few days, I starting having nighttime accidents.

I can also tell when I have missed my Imuran as I start feeling like I have the flu.

I guess I am just suggesting....start a probiotic if you aren't already taking one.

Just found this forum. I have had my J Pouch for 18 years. I have FAP so have not problems like the UC folks. In the last week I have woken up in the middle of the night, go to the head and can't go. Back to bed 10 minutes later feel the need and nothing on the throne. Back to bed and 1/2 hour later leaks. Has happened 3 out of 5 nights. It usually happens maybe once/yr. I know I am "lucky" after reading many posts on this forum, but I am a walking zombie this week. Never had pouchitis that I know of, is this it? My every 2 yr follow-up is in May but wanted to ask the EXPERTS on here.

Cuffitis can also contribute to night-time accidents. Perhaps ask your doc for some Canasa suppositories to try for 2-3 weeks.

I too had my pouch for about 10 years before I started experiencing regular (2, 3, 4+) accidents at night, and symptoms that sc56 describe. Ugh. After fistula discovery, antibiotics, and canasa, accidents have been reduced significantly.

Good luck --