Hello All! I am new to the forums and am looking for some advice on caring for a j-pouch and what to expect post surgery. Last fall, I had a very fast acting case of ulcerative pancolitis that perforated my colon. I had a sub-total colectomy and end ileostomy created to save my life. I am a lucky girl.
In May, Dr. Remzi (formerly Cleveland Clinic) created a j-pouch and loop ileostomy, and I am doing very well. I am working out, running, and feeling better everyday.
My takedown is scheduled for Sept. 19th, and I am looking for some advice. I'd imagine there are forums that entertain this very question, but after going through 6 pages I haven't seen it yet, so I apologize if this is repetitive...
What is your best advice on what to expect after this surgery, caring for your pouch right out of the gate, or even long-term "wish you would have known" things?
I should also mention that I have Celiac's Disease who also eats largely anti-inflammatory, am a runner and boxing instructor (fitness addict), and have adapted very quickly thus far. I have also been in the management side of Food for my entire career and am a foodie with IBS & IBD (if such a thing exists!) I have loads of food advice to give to this group!
-Kati