Hello everyone! I can't believe I just discovered this group. I had my colon removed and j-pouch formed in 2002 and take down in early 2003. I have for the most part not changed my life much at all. However, I have had to have 3 scar tissue surgeries because of mechanical blockage issues. Has anyone else had any problems with this. Apparently I grow scar tissue like crazy so it is a vicious cycle. If you do have blockage problems, what are your go to cures to keep from having to go to the emergency room. Mine are awful. Always throw up for hours and the pain is excruciating. After I have the scar tissue surgeries I typically go a few years with very few blockages. Also was wondering if any of you have trouble with b12, iron, total protein, or any other deficiencies. I am currently fighting a vicious bout of Pouchitus, which I have only had a few times in 15 years. Using cipro and canasa. Has anyone ever had terrible lower back pain when you have a bad case of pouchitus? I know this is a lot of questions and I don't even know if I posted this in the right place. Please give me direction if I am using the site incorrectly. I am just so excited that I found you wonderful folks!!!!!
From Granny in the Piney woods of east Texas.