Hello Everybody,
I am recently post op 3 weeks from my take down. I had UC for about 14 yrs. before i stared having flare ups that wouldn't respond to any medication.
I was presented with to options. 1. Go to a Mayo Clinic and have my immune system wiped out with radical biological drugs; with no guarantee of remission or 2. Have my colon removed, ilestomy and then take down.
I am married and my daughter at the time was 3.5 years old and I did not want her to grow up watching her father being constantly sick from UC. So, we elected for the surgical option.
It has been trying to say the least. Probably the most difficult now that I am using my small intestine and J-Pouch as a pseudo colon. Lack of sleep is really kicking my ass. But it has been helpful to find a support community with others who have had the same experience.
My last Dr. appointment was as least encouraging, when he told me I was exactly where I was supposed to be. I look forward to meeting others via this support group in the future.
Original Post