Hi
My son had Jpouch surgery last year; it has been six months from the last stage. We are still waiting for things to get better.
The first issue is the abdominal pain. It has been there from the beginning. It comes in waves and is very intense while it lasts. Sometimes it is accompanied by loud noise that can be heard across the room. The MR Enterography did not show anything to shed the light. After the bout of pouchitis in December the 3 weeks of flagyl did not change anything. The doctors are saying pain is not a typical symptom of pouchitis. The surgeon looked at the pouch, it looks OK. Now he was prescribed cipro 250 mg for 10 days with the idea that it could be pouchitis or SIBO. The pain was better on some days but it still there. The doctor also added entocort. Did anyone have this kind of pain?
He is also severely anemic and getting iron infusions. His hematologist said he has a collection of such patients and that they don’t absorb iron from the gut. Why would it happen, he was doing great during the ileostomy stage and was never anemic during the worst colitis days?
Another question is about cuffitis. Canasa or hydrocortisone foam do not help. What else can he try?
Regards and Best of health
My son had Jpouch surgery last year; it has been six months from the last stage. We are still waiting for things to get better.
The first issue is the abdominal pain. It has been there from the beginning. It comes in waves and is very intense while it lasts. Sometimes it is accompanied by loud noise that can be heard across the room. The MR Enterography did not show anything to shed the light. After the bout of pouchitis in December the 3 weeks of flagyl did not change anything. The doctors are saying pain is not a typical symptom of pouchitis. The surgeon looked at the pouch, it looks OK. Now he was prescribed cipro 250 mg for 10 days with the idea that it could be pouchitis or SIBO. The pain was better on some days but it still there. The doctor also added entocort. Did anyone have this kind of pain?
He is also severely anemic and getting iron infusions. His hematologist said he has a collection of such patients and that they don’t absorb iron from the gut. Why would it happen, he was doing great during the ileostomy stage and was never anemic during the worst colitis days?
Another question is about cuffitis. Canasa or hydrocortisone foam do not help. What else can he try?
Regards and Best of health
