Skip to main content

Hi everyone. So I had my takedown at the end of March and I have had nothing but problems since then. First, they thought I had pouchitis because of blood, frequency, and pain, so they gave me flagyl which made me extremely sick and nauseous losing a lot of weight. I kept complaining of symptoms and blood, so then they did a rectal exam and my surgeon thought I had a fissure and wanted to do a scope to make sure. I then had a scope about two weeks ago and my surgeon told me I have two fissures and pouchitis so to take 3 sitz baths a day and cipro this time instead of flagyl. I started to feel pretty good on cipro for a week because my frequency went down, but I was still having pain from my fissures and I have a hemorrhoid as well because of inevitable straining that I really try not to do. Does anyone have any advice for me with fissures or hemorrhoids? Diet changes that help your bowels and make them more formed? Anything will help! I really hope I do not have reoccurring pouchitis. I am 18 and thought this surgery would start to give me my life back!
Original Post

Replies sorted oldest to newest

Hey ccanepa456 Smiler

I can't help you with fissures or hemorrhoids but I have some tips for you concerning forming your bowels better.
It is no diet but medicines, but at least I wanted to let you know that, maybe that helps as well Smiler
As I am from Germany I don't know whether the name of these medicines is the same in the USA but it's worth a try.
The first one is Lopedium. This is a medicine that tries to slow down your intestinal peristalsis so you don't have to go to the toilet that much. At least that's the theory.
The other one is called Colestyramin. This medicine should bond bile acid and therefor lower the frequency of bowels as well.
I hope you understand what I mean with what I wrote down Smiler That 'medical english' is quite hard to use as there are many unknown words :O
Hi,
Metamucil wafers help to bulk things up greatly, bran or bran muffins, oatmeal, wholegrain breads, bagels or pasta, rice, bananas, apples/applesauce seem to work well alone or incombination.
Are you drinking enough fluids to replace what you are losing? It will help to make you feel better...lately other than my sugar-free homemade lemonaide, I like pomagranit juice with or without blueberry or cherry...I cut it down with water and add ice. Makes a nice refreshing coctail that I can sip all day long and it has an astringint effect on the gut. Seems to slow things down.
Avoid orange, grape or prune juice (they are jet fuel for pouches!) and most citrus other than lemons.
IF you are really, really running a lot, try drinking the cooking water from rice (just cook it in double the usual water and then drink a few tablespoonsful of the liquid every couple of hours. It binds things nicely. (I just eat very soupy rice and add cinnamon and vanilla or brown sugar.)
Others will give you info on meds and dosages...hope that this helps
Sharon
Yes, remaining hydrated is extremely important. Definitely a low residue diet for the time being at least; I would hold off on the experimenting with other foods until the fissures are healed up. Immodium can help slow things down, and there are prescription drugs as well. Metamucil biscuits are great.

Now, for treatment: nupercainal is your friend; I think you'll need a prescription for it, but maybe not in the States. Definitely helps with both the fissures and the hemorrhoid. Then sitz baths, a lot of them. As warm as you can stand the water, just sit for a minute or two in it. You don't need any fancy contraptions, just run a couple of inches in your tub, and place a folded wash cloth or small towel under your bum (so you don't have to sit on the hard tub, which can hurt). Soak for a couple of minutes, DAB to dry (or use hairdryer on low), apply barrier cream. If you can get Sudocrem, that's the best. If not, good old-fashioned A&D diaper ointment is fine.

Do the nupercainal as often as allowed according to package directions/prescription; take a sitz bath every time you go to the bathroom and definitely before bed. A few days like that should make a major difference, especially if you are eating low-residue, not straining (as much as possible), and keeping hydrated. Make sure to keep an eye out for infection, and get treatment right away if you suspect any.

Good luck!

Gin
These are all solid replies so I just wanted to stop in and tell you it will get better. I had a lot of issues after my takedown as well, my mood was pretty dim but when I started seeing/feeling small improvements my mood lifted. It takes time but we get there. Touching base on oatmeal though, I have that every single morning, from all that I have read it seems to be a pretty easy on the pouch type of food for everyone. I don't really recall ever seeing someone who couldn't do it..always someone though. I hope you feel better soon!

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×