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I had a scope done on my pouch last week. Afterwards I was told that there is some narrowing at the top of the pouch when it is full (of air). I've had my jpouch for 17 years, and this has not happened before during my scopes. I got a copy of the report which says:
"When the pouch fills up with air,it does cause a ball-valve effect and the entry of the pouch gets narrowed. I was not able to pass the scope through this area today. We would be able to do so with an ultra slim scope, but I do not think there is an indication to examine her small bowel more proximal today."

I have a phone follow-up appt next week, and I'm unsure if I should ask that this issue be investigated further. I'm worried that this means that the pouch has moved, or it isn't properly anchored anymore? I have read that some people have had surgery to tack their pouch back into the wall of the pelvis. I live in a small town, so my scopes are done by a general surgeon. He did not seem overly concerned about the issue. But I am worried that it could lead to torsion of the pouch, or that the section of the intestine above the pouch could get stretched out if things can't flow freely into the pouch. Do my concerns seem warranted? Has anyone had experience with this, and what did you have done to rectify it?

Thank you!

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During a scope the endoscopist pumps a lot of air into the pouch. The particular shape of your pouch balloons in that situation and causes a completely reversible narrowing. I wouldn’t worry about it if you aren’t having any back-ups. It probably would only narrow when your pouch was already full, at which point it’s really time to use the toilet.

Last edited by Scott F

I also would not worry either. However, if your general surgeon is using a sigmoidoscope, then he is limiting the exam. My scopes have always been done using a pediatric endoscope, which is much thinner and more maneuverable than a sigmoidoscope. The exam always includes examining the terminal ileum.

Jan

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