I'm hoping for some guidance. We live in Washington state and have struggled to find good help for my wife.
My wife was born with Hirschsprung's disease, but wasn't really cared for as a kid and dealt with the side affects all the way through college. She received a J-Pouch as a youth adult and that seemed to be a game changer for her. She has dealt with bowel obstructions on and off, but generally was able to manage everything.
Recently she has been diagnosed with gastroparesis and at the same time, inflammation in her small bowel and ulcers and fissures with the J-Pouch. All of these things together are causing extreme pain. She has now been on 6 weeks of antibiotics and 5 weeks of steroids, but has seen no improvement.
We are looking for someone or some group that may be able to help her.
Thank you for your time and please let me know your thoughts.
