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Greetings. 

 

I'm brand new to this page.  Had my J-Pouch connection a little over two weeks ago after having an ileostomy/total colectomy (cancer) seven months ago. 

I know that this is really, really early in the game.  My surgeon said that for about six weeks, my bowels are going to be in revolution mode.  I can't do anything like Immodium for another month because that will interfere with my body learning how to use the new pouch. 

 

Things are getting better during the day.   Lots of liquid stools. 

 

The problem is at night.  I'm having 2-3 accidents during the night.  The urge to go isn't waking me up; the mess is.  And what's more irritating is that the consistency isn't liquid; it's pudding-like, which is a nightmare to clean up. 

 

Anyone have any tips?  Is this completely normal? 

 

Thank you for taking the time to read this.  

 

 

 

Replies sorted oldest to newest

This is rough, certainly on the more miserable end of normal. Have you been doing kegels seriously for a while? They can eventually help improve sphincter tone a bit. Perhaps your surgeon would permit Imodium or Lomotil just at bedtime to help with this - I started on Lomotil immediately after surgery. You could also stop eating hours before bedtime, and try a small, fatty snack (like a spoonful of peanut butter) at bedtime to slow things down. Good luck!

Scott F

I’m glad things are getting a little better each day. It’s definitelt a process. I’m surprised your surgeon doesn’t want you to take Imodium or lomotil. From what I know, the effects they have on the system doesn’t seem long term and they make a huge difference. 

Accidents suck. From what other people have said on this site, your control may be impacted by the length you had your ostomy. Maybe your muscles just need to get accustomed to being used again. 

I second what the previous person posted/ peanut butter, mashed potatoes, etc may help. I also found that if I stopped eating 2-3 hours before bed, that would help. 

Hope stuff keeps getting better. I’m about 9 months post takedown and I’m about 8-10x a day. It’s been a life changer though!!!

B

I had an ileostomy for many years before J pouch surgery, I've never done or been advised to do Kegels, not saying it won't help your situation, just don't think the length of inactivity makes much of a difference.

Since takedown surgery, just before being discharged, my Surgeon said I can start the Imodium immediately,

He also said, he's wont suggest how many Imodium tablets to take, as it will depend on the frequency of BM, so best I work it out myself, as to what works best. He did stress to NOT take more than SIX Imodium tablets per day.

FM
Last edited by Former Member

I think this is normal so soon after takedown, two weeks is a very new pouch. It will get better. Your muscles and new pouch are learning how to live its new life, learning what to do. Remember that your pouch used to be your small intestine, expected only to absorb nutrients. Suddenly it's expected to be a colon and hold stool. Give yourself time. For now, try not to eat big meals late in the evening, or eat less fibrous foods and vegetables for now, and have more pasta, basmati rice, banana, baked potato, sourdough bread, and lots of protein foods to help heal your tissues.

In the meantime, are you using mattress pads and old towels?  I used to sleep on baby mattress liners (didn't need to line the entire bed, just the section under the danger zone). I picked up a bunch of them for under $10 from a consignment / used clothing store, laundered them in bleach and used them along with white towels which are easy to throw into the laundry (and bleach) everyday. After a few months everything improved. I hope it will be the same for you. Good luck to you.

 

Winterberry

I agree on the baby mattress liners. You can get some from Amazon- they use them for elderly incontinence, under chairs or even in hospital beds for easy clean up if you have an accident. I think I ordered a few after my takedown. I keep them handy if I get sick- if I’m having a gastro big I find I leak easier. When my body just isn’t working right bc Im sick, all sorts of leaking happens. Stay strong!! 🤛🏼

B

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