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I was one of the long termers on antibiotic rotations (since 2007) and they worked great until they didn't. I've been through them all and for last number of years was down to Cipro still working fairly well..... but now I have developed some peripheral neuropathy and need to make a change.

So now off Cipro and using Budesonide to transition into Entyvio sometime in the next month or two once all cleared with insurance and such. I feel defeated but I guess at least there are still options.

I'm in the US and still working and have good health insurance currently, but I wonder for those that are on ACA prior to Medicare and without employee health insurance, how has it been with the high cost of Entyvio or other expensive meds? I hope to be done working in the next couple years and will have some gap years on ACA before I can move to Medicare. Thanks!

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In most places ACA policies are very much like employer policies. I used the ACA to purchase the same Blue Cross policy I had purchased privately before retirement. Depending on your income the subsidies can make the premiums quite affordable, and if you choose a silver-level policy there can be appreciable cost sharing that lowers deductibles, co-pays, and annual out-of-pocket maximums. This is entirely different from Medicaid, which (at the lowest income levels) is essentially free, but because of the poor reimbursement can make it hard to see a doctor that suits you.

@DJ H posted:

I was one of the long termers on antibiotic rotations (since 2007) and they worked great until they didn't. I've been through them all and for last number of years was down to Cipro still working fairly well..... but now I have developed some peripheral neuropathy and need to make a change.

So now off Cipro and using Budesonide to transition into Entyvio sometime in the next month or two once all cleared with insurance and such. I feel defeated but I guess at least there are still options.

I felt the same way. I was a Long termer on antibiotics from 1995-2015. I went on Remicade back in 2015 and haven't looked back, although I still need antibiotics occasionally to supplement the Remicade.

I moved from employee insurance to ACA in April of this year due to transitioning from an employee to a remote independent contractor. There was a lot of plans to choose from on the ACA for the state I moved, Oklahoma. I made sure to pick a plan that would cover the Stelara that I was using. I ended going with a United Healthcare plan. They had filters and stuff on the marketplace that you select to narrow down the plans specific to what you need/want, including the deductible you want.  I chose a more expensive ACA plan, knowing that for me and my family the better coverage was needed and in the end would save us money. There does seem to be a little fewer options of some doctors in network on the plan I chose though the local GI center accepted it. I'm paying comparable premiums to the company plan I had (which I had to pay a portion).

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