Hello,

having been diagnosed with cuffitis last October, I can relate to exactly your experience. I restarted a medication after the pouchoscopy unrelated to my pouch.

I had a month of absolute hell with cramps, diarrhea and horrible butt burn.

when I stopped that medication my awful symptoms alleviated. When I restarted it one month later, symptoms returned, so I discontinued that drug permanently.

I (and am assuming we) have to be very careful introducing new drugs and be on the lookout for side affects that can mimic cuffitis, pouchitis, etc.

my new plumbing is very picky when it comes to new drugs and new foods. It can get very upset with me when I change my routine😫

@New577 posted:

Hello,

having been diagnosed with cuffitis last October, I can relate to exactly your experience. I restarted a medication after the pouchoscopy unrelated to my pouch.

I had a month of absolute hell with cramps, diarrhea and horrible butt burn.

when I stopped that medication my awful symptoms alleviated. When I restarted it one month later, symptoms returned, so I discontinued that drug permanently.

I (and am assuming we) have to be very careful introducing new drugs and be on the lookout for side affects that can mimic cuffitis, pouchitis, etc.

my new plumbing is very picky when it comes to new drugs and new foods. It can get very upset with me when I change my routine😫

Hmm, that is very interesting to hear. I am sorry you had such a hard time but am glad you were able to work out what was causing the problem and stop taking the medication.

Just heard back from my specialist and got the okay to stop one of the two possible culprit medications. It has definitely been giving me nightmares and exhausting stress dreams, so I needed to stop it anyway. Will see if my diarrhea and cramps go away as well.