Hi everyone happy new year to you all. So I've yet another question for you all. All summer since my take down in May I've been in and out of hospitals first with suspected blockages then with vomiting then with severe pain and vomiting. This whole time I have full control over my pouch no leaks and not going anymore than my 5-8 times a day depending on what or how much I can eat. When I eat my insides hurt and basically stick to liquidised soups now. I'm under a new surgeon as my surgeon retired and he kept thinking I was complaining about the amount of times I go to the toilet so in November when I saw him last after being in A&E twice the previous week I got a little upset and annoyed basically said I was worried about the severe pain I'm in the vomiting and blood which sometimes is bright and other times darker. So he scheduled a scope to be done and I went for it there on Monday. As soon as we got past the are of what was my rectum and just below the pouch there was inflamation and some ulceration the pouch was fine and just above the pouch was the same. My surgeon asked for biopsies and said that we would get it sorted. He then explained that I wasn't showing usual signs of pouchitis and this is what is throwing him and why I'm getting biopsies tested. So my lovely people here's the question of you who have had pouchitis have you experienced any of my symptoms without the increased bowel movements or do you always have to have the increases bowel movements. He said to me depending on the results he wants to do a scope into my stomach due to the vomiting lack of appetite and my low tolerance of solid foods. One good point from all of this is my new surgeon and I know where we each stand and have better relationship than before.
May I also add that I have recurring ulcers in my mouth not just on the gums but tongue roof of mouth the back of my mouth and I've inflamed eyes as well and often on eye drops for.
Hope you all had a lovely healthy Christmas.
Grace
Original Post
