I was first diagnosed with Ulcerative Colitis at the age of 12. I have never been "healthy" for more than 3 consecutive months. It has been 8 years since the diagnosis and I am still sick. Hospitalizations, Homeschooled, etc. I received emergency surgery and had it done in 3 parts. Amazing to say but when I had the illeostomy bag I have never felt better in my life. Unfortunately it is very hard to deal with mentally and had it reversed. I was promised that I would be "cured" if I had the JPouch surgery. 2 years after the surgery I am STILL SICK. Everyday is a battle for me. Always experimenting with different foods and medicine to see what effects me. I have come to the conclusion that Doctors do not know anything. You must be your own doctor and not rely on anyone else.
1. If you have severe Crohn's Disease (of the pouch) you should be taking a biological agent aka Remicade, Humira...
2. You should also be on an enema/suppository every day aka Cortifoam enema, special compounded Entocort suppositories.
3. Rounds of anti bionics. Switch up your anti biotics every 2 weeks so you do not build up resistance to them.
4. Find out if you have any food allergies aka Celiac Disease or Lactose Intolerance.
5. As for diet, it is simple. You have to eat like a diabetic person. Our diseases arent so different. It all has to do with an improper functioning immune system.
STAY AWAY FROM SUGAR.
STAY AWAY FROM DAIRY.
STAY AWAY FROM FRIED FOODS/FAST FOOD/FATTY FOODS
EAT LIKE A BODY BUILDER. ONLY NATURAL FOODS. IF YOU EAT GARBAGE YOU WILL FEEL LIKE GARBAGE.
A person who has chronic inflammation like myself must be on a hefty amount of medication for the rest of life. Nothing as of right now will cure the disease so you must do everything possible to combat it.
TAKE IMMODIUM or LOMOTIL or PEPTO BISMOL.
Pepto Bismol seems to work wonders sometimes when everything is going wrong.
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