My insurance won't cover my previous doctor that did scopes on me. So does anyone know of a doctor in WI that scopes pouches? I prefer Madison area, thank you.
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I found a doctor in Madison to do my scope, at the UW Hospital. I called the Mayo Clinic for instructions and to have some questions answered as I am a patient there. I had a scope done in 2001 at the Mayo Clinic and just wanted to talk to them to feel more informed about the process and what instument was to be used on me here. I don't know another person in Wisconsin with a Kock Pouch, and most doctors don't even know what it is or even heard of it. I will be having no sedation, which I've never had on my past ones either. I have informed the UW Hospital they may use this as a learning tool as the UW Hospital is a teaching hospital. The more people that know about the Kock Pouch the better! 
Any GI can do a scope.
My Kock Pouch is 34 years old and I have had no further surgery since May 1978 on my valve or pouch. I am very fussy about who touches my pouch and want to know everything about the process of scoping by the original Kock Pouch doctors to make sure it is being done correctly. Alot of doctors don't want to deal with a Kock Pouch because they don't know anything about it or even what it is. I say be informed, don't just let any doctor touch you.
Yes some don't but many do. I have 4 in my area that can scope me. 2 surgeons and 2 GIs (in case one is out of town, etc.) Plenty will learn as well. IT isn't hard. The scope is the size of the catheter that is used, you can be awake during a scope as well.
Hi Jasmine...yes us with long term awesome KPs are very relunctant to have a non specialist scope. I am very lucky, my GI dr in my hmo group is familiar with the KP and does mine.
He uses a very small child size cath. He is not able to do it in his office (like the surgeons usually do as you know) so it's done out-patient endoscopy. I can get sedation if I want.
It's nervewracking for sure. I don't know if you've called around to find someone. I hit the jackpot as I was in the hospital for diarhea and they assigned him. I freaked out at first but he explained all about the KP and assured me he'd be gentle.
He uses a very small child size cath. He is not able to do it in his office (like the surgeons usually do as you know) so it's done out-patient endoscopy. I can get sedation if I want.
It's nervewracking for sure. I don't know if you've called around to find someone. I hit the jackpot as I was in the hospital for diarhea and they assigned him. I freaked out at first but he explained all about the KP and assured me he'd be gentle.
Thanks Janice....yes I am nervous about someone scoping me without knowledge of ever scoping a Kock Pouch before. So hopefully my insurance will cover this specialist in the future. As, there is always a chance of a perforation with a scoping with a colon or without.