LOWER BACK THROBBING ???

Poucho
I am sorry you are dealing with this. I hope you post back as I have similar symptoms that come and go and I'm going in this week to be checked for a fistula. Is that the same as a sinus tract? I believe I may have had an internal snail abscess that burst a few days ago with passing blood etc and my pain since has been pretty bad. I kept thinking all my symptoms were cuffitus related but now I'm skeptical ESP with the throbbing anal pain I had the last few days before the bleeding. Good luck with your exam. I am not sure how they diagnose the other. Possibly by symptoms and X-ray.

I would tend to think that this is a sciatica type pain, possibly related to your sinus tract. It is consistent with the "swell and drain" cycle of sinuses and fistulas. The swelling cycle could cause nerve irritation.

AS is more of a constant pain, worse with inactivity and improves after you are up and active. I'm not saying it is not AS, but sciatica is very common in the general population.

Jan

SINUS ARE CLOSED ENDED, FISTULAS ARE OPEN ENDED AND LEAD SOMEWHERE TO DRAIN OUT

Hey Jan, i was reading about sciatica nerve pain and this sounds exactly like what i have. I get those sharp electric shocks down my legs sometimes. In the past month i have had this twice, lasting roughly a week. And it does not get better with stretching or movement like AS should. I will ask Shen about it tomorrow before the scope what his feeling are on this related to my sinus. or if its just an unrelated sciatica issue. as of right now i am taking oxycodone to take the edge off. are there any kind of anti inflammatories i could take short term or would those not help this issue? thanks Jan

NSAIDs might help the sciatica, but you need to run that by Dr. Shen. The docs at Cleveland Clinic are pretty much opposed to any use of NSAIDs with a j-pouch because they have seen so many cases of pouchitis associated with them. Plus, the fact that you already have issues with your pouch, you should not independently take these without Dr. Shen's input.

For myself, I will limit use of NSAIDs to about 2 weeks when I am having an arthritic flare. If that does not snap me out of it, then we have to go with steroids. In your case, your best bet would be a referral to a ortho doc specializing in rehab/mechanics (physiatrist), to get a proper diagnosis and treatment plan. That is what I wound up having to do when I had escalating neck/shoulder/arm pain with tingling/numbness. Turned out to be a pinched nerve root and severe spinal stenosis. Once the inflammation went down and I learned what movements to avoid I have been pretty much OK. Tried acupuncture but that did not do much for me.

Jan

had my kneedle knife with Shen and here is what he found and his thoughts.

First thing he found was my inflammation in cuff and everywhere else in the pouch is completely gone.He is taking me off the Entocort right now.

he stated my sinus has improved from the previous kneedle/knife therapys and performed it again. He will do one more in roughly 6 weeks.

Here was the problem. The back pain i was experiencing was maybe caused by the small sinus he found at the tip of the jpouch leading to the deep presacral sinus. He used a Bear Claw clamp to close it off and will check it on next scope.

his overall thoughts were that we are making progress and he is optomistic regarding my pouch.

I would be ok with this but these procedures are expensive even with insurance.

Sounds like good news although I am sure you are frustrated with the length of time This taking. I can relate to the high cost of additional procedures. Best of luck to you moving forward. I use canasa pretty often for my chronic cuffitis. Hopefully this may help you as well if you are not already taking it.

I was having the same back pain for a couple weeks so I went to my urologist because I thought it may be a kidney infection. I found out that not having a colon is a reason for higher rate of kidney stones and thats what it turned out to be. I passed three of the darn things in 2 weeks and only had lower back pain. Weird but just a thought.

I suspect that the connection between colectomy and kidney stones would be the tendency to get dehydrated. Stones form when the stuff they're made of gets more concentrated, as it does when we're dry.

I had terrible lower back pain that would come and go. At that time, I swore it was nerve pain/damage. I also had a sinus/leak. I opted for a temp ileostomy in November and the back/nerve pain went away. Point is, the sinus can cause all sorts of problems. It's no coincidence.