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well, I am on my second jpouch that was hooked up just over a year ago. First one was a mechanical failure that had a sinus that ended up with a sinus that leaked into my spinal column.Had horrible back pains from it. New pouch was constructed in October 2015 by Dr Remzi at Cleveland Clinic. They did the gastrograffin enema xray before takedown and said good to go no leaks. Had the takedown in Feb 2016. A few months after started experiencing occasional lower mid back pains. Dr Shen my GI ordered an MRI just to check on things in Sept 2016, everything looked good, no leaks or anything to be concerned about. I still get these pains in my back that last several days and get better, but seem to be very intermittent. I am not very active and never lift anything heavy. I would imagine the MRI would be pretty accurate on finding any kind of sinus,fistula, leak, anything of that nature correct?? I am scheduled for my annual pouchoscopy with Shen in July. Am I panicking again for no reason? its just I have been through so much, and my other leak I had back pains, but that showed on the MRI. If this MRI SHOWED NOTHING SHOULD THAT PUT ME AT EASE? 

Last edited by Pouchomarx
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I had back pain from a leak once - - that was real back pain, so I hear ya. 

If your pics come back negative, it could be as simple as strengthening legs and core.  I suffered from average-Joe back pain for years until I began doing some lite P90X exercises that conditioned my thighs.  Added some core strength....and I was in business.  Really raked myself over the coals for not dedicating some time to take those steps earlier. 

it appears that my lower back pain is starting to subside a bit. I have been sleeping on a heating pad and trying to stretch out a few times a day. Now if this was a pouch leak causing the pain, would it be constant pain? or can it come and go?

also since I had the MRI in September that showed nothing bad, but I still have back pains on and off since, can I assume the pouch is still ok? I know I hate to assume anything but people have said MRI is not always accurate? or is it in a pouch leak?

The reason that it tends to worry me is my first jpouch had a leak and I had lower back pain for months before them finding out I had a spinal infection from the leak. That is my worry. But my back has been almost pain free for about 10 days since using a TENS unit. Dr Shen still wants be to get another MRI just to be certain nothing is going on. Once we rule that out then I will see a rheumatologist maybe or just mark it up to back pains and deal with it.

Dont want to nag.... but Just thinking a chiro/physiothepaist/osteopath could probably tell immediately if the pain was likely musco-skeletal.  It might save you a bit of worrying (or even money) while you wait for the MRI.

Even if its not musco-skeletal, a visit to the chiro wont do any harm, in fact they recommend regular visits just like a dentist.  Chances are it will fix some other issue you didn't even know u had lol

Agree with Claire - could be flouroquinolones... or osteoarthritis, or adhesions pinching nerves, or rheumatoid arthritis, or ankylosing spondylitis, or sinus or infection. But if infection - it would probably be near constant pain. You may have to try some things to see what helps, and if nothing - investigate further. My own back pain issues have led to very limited diagnostic efforts on the part of my docs.

Hi there. I have a lot of lower back pains as well and also had a leak once. But the leak was quite big and I had an emergency operation.

As others recommend I would try physiotherapy or perhaps restorative yoga poses. The latter you can find online. I use Yogaglo and it is good as you can advance.

Do you have a lot of gas? That can cause a lot of tension in the back muscles. You also write that you are not very active... If you look into new knowledge about back pain they now know that lack of activity is a huge cause of precisely lower back problems, so maybe a daily long walk could take away your pain?

I wish you luck. Let us know how it goes. I myself am fighting with pain in both upper legs right now ��

 

had MRI yesterday and just spoke to nurse, said all looks good. No pouchitis, no fluid collections or leaks.. good news!! very happy. said if the back pains come back to possibly look into a rheumatologist. But now that I know its not pouch related I need to get into excersising and yoga more. thanks everyone for replies and well wishes...

Evening  

6 weeks ago I had Pouchitis and severe back pain.Place on cipro n flaggl immediately,Felt better well few weeks back I fell and again back pain.Went to ER told my medical history.Told ER Md about Jpouch and pouchitis .This is his response OH you are so in tuned with your body,No testing handed me just  pain pills.DIagnosis  could be this could be scatica that I walked out

 

I prefer my heating pad n drive with ice pack

sad this is a ER Md in NYC

Cassie

Pouchmarx, I hope everything gets better for you. I wish I could help but I don't have that kind of pain

Cassie, I know what you mean about we doctors only giving you pain meds. When I've been in the ER they just give me pain meds or some kind of meds. When I had my temporary ileostomy, the ER staff really didn't know anything about it. I also had an ER doctor ask me how my surgeon was going to reverse my ileostomy. These are the reasons I hate going to the ER and I try to avoid going there.

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