Longevity with Jpouch

PSJ,

Your question has been the subject of numerous prior threads on this board, and possibly a poll as well. The short answer to your question is that there is no life expectancy of a J Pouch. There are many people here who have J Pouches that are over 30 years old (myself included) and I believe one person who has had it for 40 plus. They didn't really do J Pouches prior to the 1980s. Some people end up with problem pouches and have to have them removed after a month, and some have lived with them with zero problems for 30 years plus and will die with them. So there is no industry standard life expectancy of a J Pouch. It's variable.

I’m the one with the j- pouch but my husband has Psoriasis and now he was just diagnosed with Psoriatic arthritis. He recently just started on Skyrizi…. Another new biologic that targets auto-immune diseases. Skyrizi was intended for Chrohns disease with a lot of success. Maybe if Stelara doesn’t work you could look into this one. My husband has noticed an improvement with his Psoriasis and the arthritis.
Good Luck!

I’m 42yrs with a Jpouch. Tried Stelara, made me deathly sick. Never again will I take a biologic.
Right now I’m off all meds, other than high dose Vitamin D & Calcium, and I take something called TH1 support-another vitamin, and watching my diet. Been doing well.
Apparently JPouches can last a lifetime!

@ytcrockpot posted:

I’m 42yrs with a Jpouch. Tried Stelara, made me deathly sick. Never again will I take a biologic.
Right now I’m off all meds, other than high dose Vitamin D & Calcium, and I take something called TH1 support-another vitamin, and watching my diet. Been doing well.
Apparently JPouches can last a lifetime!

Hi!  What does TH1 support do? 

My DH is going on 28 years.

@lablover posted:

My DH is going on 28 years.

I may be having a brain fart, but what is DH? 

@Sara Marie posted:

Hi!  What does TH1 support do?

It’s an immune support supplement. Pure encapsulations puts it out. I take it under doctor direction

'Dear Husband'

@ytcrockpot posted:

It’s an immune support supplement. Pure encapsulations puts it out. I take it under doctor direction

Does it help?  What have you noticed it does to you?

@Sara Marie posted:

Does it help?  What have you noticed it does to you?

TH1 support combined with higher does of vitamin D & C helps with my inflammation which in turn helps limits the times I’m in the bathroom. Hopefully it continues to work.

My brother received an experimental pouch 57 years ago when he was just 9 years old.  He's doing just fine.

That is fantastic news!

I am an ancestor... literally...I've had my K pouch for almost 44yrs. At the time, my surgeon told me that it could last as long as I did...it is, in fact, my own guts so there is no reason that it should not.

I'm hoping that he is right!

K pouchers have a one-way valve, made of our small bowel, that gets intubated regularly throughout the day, so it is our weak point and it can break down and require a fix...that said, I've already had a few fixes so I am hoping that it lasts at least another 20 yrs or as long as I expect to be around!

Sharon