I had my surgery almost 14 years ago, and never had to take anything other than Imodium !!!! But then last fall I something happened. I was so sick, lost control even during the daytime! It was like all the fluids from stomach were leaking out of my bum and burning my skin. I could barely walk at the end of each day the pain was so bad!
Went to the hospital , saw my surgeon, he diagnosed it as pouchitis. He gave me all the drugs fight the pouchitis and lomotil for the pain . 2 weeks later I was back at the hospital still in pain that could be rated 9out of 10. He gives me more lomotil. 120 this time enough for a month. I return in late February, tell him I'm still in a lot of pain , level now is from 5-7. Takes another look up there says everything looks amazing and healthly!!!! I say why am I still in so much pain still in this is pouchitis. His response is we may have misdiagnosed you , we blame a lot on pouchitis... So they continue with the lomotil.
over then 10 months I take that crap( lomotil). In constant pain , tired, and feeling like a zombie. To me, lomotil, help at for but it was masking my problem.
My problem was i didn't know how to get rid of the butt burn, I was experiencing. TILL ON THIS WEB SITE, SOMEONE TALKED ABOUT PSYILLIUM,!!!
The day I started taking PSYILLIUM was the day I stopped taking lomotil. And I've felt 90% better. As we all know 100% is unachievable.
I got my life back and starting to be active and enjoying my life again.
Thank goodness for PSYILLIUM
Dan