Can all the ladies please tell me what it is like living with a working jpouch and a fistula? Is the leakage constant? What about sex? If you try and bulk up the stool does it leak less? Any other info would be greatly appreciated.
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Dawn,
I have had a RV fistula for about 7 years now with an otherwise perfect 17.5 year old pouch.
Send me an email if you want real nitty gritty detail of life with an RV fistula.
Do you have a fistula? Or are just curious?
CJ
p.s. Yes Metamucil helps decrease the leakage, and yes sex is okay with a fistula.
I have had a RV fistula for about 7 years now with an otherwise perfect 17.5 year old pouch.
Send me an email if you want real nitty gritty detail of life with an RV fistula.
Do you have a fistula? Or are just curious?
CJ
p.s. Yes Metamucil helps decrease the leakage, and yes sex is okay with a fistula.
Hi CJ,
I sent you a private message. I would like to email with you. Thanks.
I sent you a private message. I would like to email with you. Thanks.
Been dealing with an R/V fistula for 3.5 years now. CJB is completely right, bulking up does help and sex is fine (although bathing afterward has been recommended to me). Some fistulas are more active and larger than others, and every fistula can act up more at different times. A lot of how you deal with it comes down to your attitude and how it is affecting your daily life.
If I can answer any other questions, let me know.
Gin
If I can answer any other questions, let me know.
Gin
I think every fistula is different. I had to revert to an ileostomy due to fistula, cuff iris and pouch iris. The fistula pushed me over the edge but in combination with the other stuff. Living life much happier now! Good luck!