Liver transplant

UK husbandMember

Dear all,

A few weeks ago I posted a topic about my wife having hepatitis.

Things got pretty serious and we were transferred to kings college hospital, London. It's one of European top places for liver disease and a transplant centre.

Last week she had an emergency transplant, she probably only had a few days to live so it was life saving. So now she has a j pouch and someone else's liver!

The docs didn't really know the cause of the hepatitis, and we are still waiting on some test results, but she did have signs of primary schlerosing cholangitis (which is linked to uc).

I was just wondering if anyone on here has also had a liver transplant and has it affected pouch (and things like pouchitis). As she will now be on immunosuppressants for the rest of her life (inc. prednisolone) I thought it must have some effect.

Thanks,
Tom

12/27/145:57 AM

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UK husbandMember

Ps sorry for the typo

12/27/145:57 AM

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Jan DollarModerator, RN, retired

Oh my! So sorry to hear of this turn of events, but also glad they were able to find a compatible transplant in time. There have been a few members here who had transplants. I think all of them were due to advanced PSC. I have not heard of PSC advancing as rapidly as your wife's case, but perhaps she had it for a long time, undetected, before the hepatitis set in. Anyway, to answer your question, the immune suppressants should not hurt your wife's pouch function. They should actually help prevent pouchitis.

Jan

12/27/1411:40 AM

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UK husbandMember

Since the transplant, my wife has had some complications. One of which was CMV pouchitis. The liver she received had the virus and she didn't, after 3 months of valganciclovir after transplant, the hospital forgot to monitor for CMV and she got the virus. I was quite unhappy, as she was admitted to emergency 3 times with various illnesses, all of which we have since learned were from CMV and I asked all the doctors we saw to test for it but no one listened....

In any case, does anyone have any experience of CMV pouchitis? Since going on valganciclovir her condition is much better, plus they removed one of the immunosuppressents (mycophenolate mofetil) - I think this was also causing problems for her bowels.

6/22/158:53 AM

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