I'm living proof that NSAIDS can cause pouchitis. They can also cause ulcers anywhere along the G.I. tract. I also had those. Was told never to take oral or I.V. NSAIDS (including Toradol which is sometimes given for pain control after surgery). Unfortunately, after I had a minor tune-up surgery, I was given I.V. toradol for a few days, which gave me bleeding duodenal ulcers. Someone didn't read my chart, which now displays "NO NSAIDS" in bold yellow highlights. --Rose--

Wow, I have also found that if I take Naproxen for something else for a couple days, my pouch seems to get irritated.  I'd like to know what is the range of symptoms for pouchitis. What qualifies?   I just think of it as inflammation of the pouch (itis=inflamed), which may just manifest in me as puffiness in the abdominal area accompanied by less happy poops all the way to mild fever, abdominal or lower back tenderness and fatigue.  Does it have to be a full blown infection (requiring antibiotics) to be considered pouchitis?  Mine, whichever form it takes, resolves on its own with rest, vitamin C and Zinc, Aloe, a range of probiotics and probiotic foods, etc.  Maybe what I get isn't considered pouchitis.  I really have no idea.  I keep asking y'all this question hoping that someone knows the answer.  I have never had a doctor who knows anything about it, or I'd ask them.

Most pouchitis is not an infection, even though it’s often treated with antibiotics. Pouchitis is pouch inflammation from any of a variety of causes, including NSAIDs. The “ordinary” pouchitis we mostly discuss on this forum isn’t an infection of the usual sort, even though it usually responds well to antibiotics. It is probably something like an inflammatory response to a particular assortment of bacteria in the pouch. Pouchitis doesn’t usually get better on its own, but a couple of weeks of Cipro or Flagyl often do the trick nicely.

So Scott, when my pouch is inflamed and irritated but gets better on it's own, you think that's not mild pouchitis?  If it's not that, I wonder what it is?

@Sara Marie posted:

So Scott, when my pouch is inflamed and irritated but gets better on it's own, you think that's not mild pouchitis?  If it's not that, I wonder what it is?

I’m not sure how you could know that your pouch is inflamed and irritated without a pouchoscopy. Whatever you’re experiencing is something real, of course, but if it clears up by itself it’s most likely not pouchitis/pouch inflammation, though the probiotics you take might affect a mild pouchitis. Pouches can do all kinds of things that aren’t pouchitis.

Well, I guess I'll just have to settle for not knowing unless I get hooked up with a J-pouch specialist.  Anyone know of one in Austin, TX?  Houston, Dallas, or San Antonio would also be OK.

@Sara Marie posted:

Well, I guess I'll just have to settle for not knowing unless I get hooked up with a J-pouch specialist.  Anyone know of one in Austin, TX?  Houston, Dallas, or San Antonio would also be OK.

This is just so crazy, been taking advil off & on for years

My gastro said that Advil could potentially cause pouchitis.
we don’t realize how much OTC meds can affect us. Wow I had no idea