Hey guyys. So I have had my j pouch for 12 years and it was built wrong and cleveland finally figured it out. Last Wednesday I had surgery and I thought I would either have a permanent ostomy or a temporary one while the new j pouch was healing, but I woke up with no ostomy and just a one part revision surgery. Has anyone ever had one of these? What should I expect for healing? I was shocked to wake up without the ostomy. Here's hoping I get optimum use out of it. Just ate today for the first time and its achy. Any advice would help. -Joe
Replies sorted oldest to newest
What did the surgeon tell you to expect. They should talk to you afterwards so you know what your future is going to look like. It baffles me that a lot of people ask questions on here because they aren't educated by their Drs. These are honestly questions that should be answered by a professional.
They say it should go well. Ha. Im asking because im looking for advice from someone who has had a 1 step revision
The problem is that revision is sort of a vague term, surgically. It could mean any number of things were done, because basically it just means that they repaired, adjusted, reduced, advanced, supported, etc. It all depends on what was wrong with your pouch.
I think the obvious answer is that whatever was done, it was either minor enough to not require a diverting ileostomy, or conditions were perfect in there to not need one (tissues in great shape, no tension on the suture lines, no steroids on board, that sort of thing).
So, unless they messed around with your sphincters, you should not have any issues with incontinence, serious anal pain, etc. I would believe them.
Jan
I think the obvious answer is that whatever was done, it was either minor enough to not require a diverting ileostomy, or conditions were perfect in there to not need one (tissues in great shape, no tension on the suture lines, no steroids on board, that sort of thing).
So, unless they messed around with your sphincters, you should not have any issues with incontinence, serious anal pain, etc. I would believe them.
Jan
i had 4 places jan where it was built wrong, kinked, twisted or "lazy" ,,he took those 4 places and fixed them. Basically using all of the existing pouch. I came in healthy and strong , and no disease could be found or inflamattion
who was your doctor? Cleveland Clinic does not do 1 step procedures so it must have been a simple repair??
they obviously must do one step bc they did. it wasnt a simple repair. the j pouch had anatomical issues only, and the skin was pristine so he found no reason for an ostomy
This does not sound like it was a full pouch reconstruction, just a repair, simple or not, so it seems appropriate to me. A lot of this stuff falls to judgement calls at the time ofthe surgery. There seldom is an "always or never" rule. This is where having experienced surgeons pays off. They know what conditions are right for omitting the ileostomy, which has its own set of risks.
Jan
Jan
Who was your surgeon there??
dr church. it was revision moreso than reconstruction
Sounds terrific to me I hope your recovery is fast and wish you no more surgeries!
Add Reply
Sign In To Reply
66 online (2 members
/
64 guests)