jpouch-urtheral fistula

This is a rare complication, fortunately for most, unfortunate for your husband. Fistulas in general can be persistent and difficult to deal with. When simple procedures fail to close the fistula, the gracialis muscle flap procedure has been the most successful operative repair. Otherwise, a pouch revision or redo is left.
http://www.ncbi.nlm.nih.gov/pubmed/21943653

Has he seen a surgeon who has particular expertise in dealing with this type of j-pouch complication? If not, I think seeking a second opinion might be in order. I'm sorry you guys are dealing with this.

Jan

Thanks so much. We are trying to find surgeon in our area that does this procedure. Our dr recommended it but has never done the surgery so we are trying to find an experienced surgeon.

Hi, I hope your husband can find a good surgeon with the experience to repair his fistula. I have had a perineal- vaginal fistula since my pouch removal and after 2 years of numerous procedures even new ones that hadn't been tried before at the hospital I was at, I still have this problem, my pain is worse and everything is worse really. I have recently moved and I'm hoping my new surgeon who I see on 19th feb has the experience to repair. My old surgeon referred me to a general surgeon and a plastic surgeon as they said one would need to take me to bits and the other would need to put me back together again, but I'm not sure what this new surgeon will say. I'm hoping if it is too complicated for him he will pass me onto a more experienced one.
Good luck to you and your husband.
Shelly xx

Hi CCC4,

I am so sorry you and your husband are dealing with a fistula. They are difficult to deal with on so many levels.

My best advice is to find a surgeon who is an expert in fistula repair-someone who has done many of them. They are difficult to repair.

Mine was repaired at Cleveland Clinic by Dr. Remzi. Is the Florida CC location closer to you? It really is important to not have someone gain experience at your husband's expense. Too critical a procedure.

Best of luck! By the way, I'm doing very well. No fistula, no problems 'down below' :-)

Thanks so much. We have been in contact with the Cleveland Clinic in Florida. We are going to send his records to them. Hopefully they will be able to help us. Wishing you continued health.

Just wanted to give an update. We have appointment this month with dr remzi in Cleveland. Thanks so much for your help.

If you are close to Texas, Houston has a great medical center with hundreds of talented doctors. You could drive there.

I had my first few surgeries in Houston. I grew up in a New Orleans suburb. Miss it! Happy Mardi GRAS!

Well next week is the big day. Dr. Remzi and Dr. Angermier will try to repair my husband's fistula. Please remember us. We are praying this will fix his problem.