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Hi, so I am 25 yrs old and was diagnosed in Feb. 2016 with pancolitis. I had tried every medication that was available and nothing was working. After many failures, blood transfusions, iron infusions and horrible side effects from long term steroids I decided it was time to meet with the surgeon. I had part one of the surgery in April 2017, part two in August 2017 and the final surgery on September 8, 2017. Since my surgery it has been nothing but a battle. I started with watery, burning stools almost 20 times a day so I started on Metamucil twice a day which did help some, then I started having incontience at night and more frequent bowel movements at night so they had me try Imodium at bedtime. So last week still having same issues plus addition to weight loss, nausea, no appetite I called the surgeon and they said just give it time. I ended up at the gi doctor they thought of pouchitis but when they spoke with the surgeon he said it was to soon and to start on Questran on top of the Metamucil and Imodium. I have only noticed that I am no longer incontinent but still have frequent bowel trips(12-15), at night it's like clockwork every two hours I am up, nausea, weight loss, no appetite. I just need advice so I need to just give it more time or could there be something else going on that my drs need to address. Thanks 

It sounds a lot like me from last surgery until 11 months, I was always up and made at least 15 trips a day to the bathroom. I am still on the Metamucil 2 times a day and Imodium, with only 2 trips at night, sometimes only to pee. I could probably stop some of the Metamucil or Imodium but I am afraid to go backwards. So from my experience it takes a lot more time, but I would definitely ask again in 2 weeks if the nausea,weight loss, appetite is not resolved though.

SW

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