For those of you who've had your pouches removed, and had pouch fistulas as well, what happens to the fistula(s)? When thinking about it, how could a complex pouch-perineal fistula (or any pouch fistula, for that matter), that originates on the pouch be removed along with the pouch? Would there still be an opening (no barbie butt) and seton? Things have recently took a hard turn to the left for my pouch, and so I'm pretty adamant about not leaving the pouch in and going temp ostomy due to other pouch issues that I can no longer handle physically or mentally. I'll be discussing with the surgeon, of course, but would like to know if there's anybody out there who could share their experience with this. Thanks.
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