Good luck, hope it goes well for you!

Thank-you for the update I am so excited for you!!!! Hope everything goes perfect!!!! How many steps do you have to do???

3 steps

@Andreita posted:

3 steps

It will be a long journey but I know you can do this!!!! Good luck Dear!!!! You are so brave going through this long process again, I would have gotten an ostomy lol but doing it this way is the best way, that way you can say that you tried everything in the future!!! You never give up which is great my dear!

Good luck! Fingers crossed that all goes well!

Jan

Surgery went great I'm already walking the halls, pain is controlled so far

I'm back with a stoma for now and it's beautiful. I can deal with it for a few months however I don't want one forever. Surgeon said he knows what's wrong with my jpouch and he can fix me. I'm excited!

@Andreita posted:

Surgery went great I'm already walking the halls, pain is controlled so far

I'm back with a stoma for now and it's beautiful. I can deal with it for a few months however I don't want one forever. Surgeon said he knows what's wrong with my jpouch and he can fix me. I'm excited!

That's great news!! What did he say was wrong?

Great news!

Yes my rectal cuff is too long

@Andreita posted:

Yes my rectal cuff is too long

No wonder you were bleeding so much! How long was your rectal cuff???

It's 5 cm it's supposed to be 2 cm

I wasn't bleeding though. Or at least not visibly

My leftover rectum is causing a stricture and my entire intestine is swollen as a result of it. My new stoma is very big. It'll go down though. It's already constructed much better than my previous ones

Amazing things ahead for you. This will go so quickly...I'm so happy for you!

I just pooped out of my jpouch while my bag is filling up at the same time. So weird.

@Andreita posted:

It's 5 cm it's supposed to be 2 cm

I wasn't bleeding though. Or at least not visibly

My leftover rectum is causing a stricture and my entire intestine is swollen as a result of it. My new stoma is very big. It'll go down though. It's already constructed much better than my previous ones

DAAANNNNGGGGG!!!!!! That is crazy! I wonder why your surgeon made it that long? Do you plan on suing him??? You do not have the same surgeon right???

@Andreita posted:

I just pooped out of my jpouch while my bag is filling up at the same time. So weird.

I did the same thing back then lol.

I watched a video on that, if the bag fills up to the top, some stool can revert back in and go down the J-pouch or rectum and cause poop. I saw that from a medical video.

I'm home

@Former Member posted:

DAAANNNNGGGGG!!!!!! That is crazy! I wonder why your surgeon made it that long? Do you plan on suing him??? You do not have the same surgeon right???

cant sue them, they are "practicing medicine".. good luck

@Andreita posted:

I'm home

YAY!!!!! How are you doing love???

@Pouchomarx posted:

cant sue them, they are "practicing medicine".. good luck

That stinks! I forgot that sign papers before surgery and that protects them too. Her previous doctor deserves to get sued for leaving a 5cm rectal cuff, its not suppose to go over 2cm.

well a lot of doctors do the jpouch surgery, just not a lot of them do them well.. I had my first one done at Cleveland Clinic and I had a pouch leak the next day and went septic and almost died. spent 10 weeks in hospital. so even the best hospital for these aren't always perfect..

@Pouchomarx posted:

well a lot of doctors do the jpouch surgery, just not a lot of them do them well.. I had my first one done at Cleveland Clinic and I had a pouch leak the next day and went septic and almost died. spent 10 weeks in hospital. so even the best hospital for these aren't always perfect..

I am sorry that happened! I am happy you are okay

Let’s not jump to conclusions here by implying malpractice when we do not know all the circumstances. Not taking sides, but there can be conditions present at the time of the first surgery that we are not privy to, like the condition of the patient. An example is a poor mesenteric reach. Plus, sometimes people assume entering into litigation is like ordering a pizza, fast and simple. But, it can go on for years, drain your bank account, and consume your life. A poor outcome does not mean malpractice. As Pouchomarx mentioned, bad results can occur in the best places with the best surgeons.

Andreita, I am so glad your first step went so well. Were they able to salvage the old pouch, or will it be a complete redo?

Jan

Glad all's going well Andreita. I'm with Jan, sometime it's more trouble than it's worth.

Aimee