Hi, new to the site. Was originally diagnosed with UC in 1993. I was in my early 20s. In and out of hospitals for 6 yrs . 1999 I had no choice but to have my entire large intestine removed. 8 months later had J Pouch surgery done and it was at the time the best decision of my life. I had a few complications at first ( incision became infected and a leak which healed itself after CT guided drainage). Med free for 16 years and doing great. 6 to 8 bowel movements a day , no leakage at night . Till one day after a BM I noticed an egg like bump in the perianal area. Went to the doctor and he determined it was an abscess. Same place where the original abscess from the leak after surgery. Let me tell you if you never had a perianal abscess consider yourself lucky ( extremely painful). Surgeon drained it and all went back to normal for a month. Abscess came back an opened on its own and drained. Doctor said you probably have a fistula we need to put in draining setons so abscess will not form. I have been dealing with this for 4 years. Draining puss and stool out of my butt check. Doctor said it has to be Chrons and put me on Stelera. Does not seem to be helping. Anybody experience or going through something similar? Any help or suggestions would be greatly appreciated.
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