Hello back in 2013 I had my surgery for the j-pouch, prior to this the dr took biopsy's of my small intestine to test for crohns which came back negative, now today I had to get an endoscopy and a j-pouch scope (not sure what that was called), the dr found three ulcers in my j-pouch which he had told my husband i could have a mild case of crohns and took biopsy's to test for it. Im just confused as to how I could test negative three years ago and some how have it now? I wanted to see if anyone has had this experience or if this would more then likely not be crohns? any advice is appreciated!
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The tests can't tell for sure whether it's Crohn's - they just provide some guidance. Is there a reason your doctor thinks Crohn's rather than pouchitis? Pouchitis can look pretty ugly and ulcerated.
I have the same question as Scott. My last serious bout of Pouchitis saw me with horrible ulcers in the pouch, but was cleared up easily with antibiotics.
Gin
I had on occasion ulcers in the pouch as well
Hi. I was diagnosed with Crohns a year after surgery. Since I'm allergic to Sulpha and Tetracycline I had limited options at the time (1994). I tried acupuncture and it has kept me symptom free since then. I've had pouchitis a few times over the past 22 years but not more than a handful of times. Don't worry - if it is Crohns you will be okay!
How does Accupunture work for this?
My Mom was a nurse and in the medical community there were good things being said about a Chinese doctor (who also had his M.D.) in my city. I went to see him and he treated me with acupuncture and I still go regularly over 20 years later. TCM (Chinese Medicine) follows a very different rationale than western medicine. I don't know how it works, it just does in my case. If you are interested I'm sure you could find a credible doctor of TCM in your area. Don't go to a physiotherapist who does acupuncture, go to a Doctor of Chinese Medicine. Its worth a try if you're up for it.
I see a appunturist for another issues, where do they put the needles IBD?
Originally Posted by 1993SPouch:
Hi. I was diagnosed with Crohns a year after surgery. Since I'm allergic to Sulpha and Tetracycline I had limited options at the time (1994). I tried acupuncture and it has kept me symptom free since then. I've had pouchitis a few times over the past 22 years but not more than a handful of times. Don't worry - if it is Crohns you will be okay!
I'm doing acupuncture as well and am wondering how frequently you go?
I know it's different for everyone but I only feel it truly works for my flaring of pouchitis or really any symptom ((I have crohns now) when I go 2x/week. of course I get remiss when I'm feeling good and don't go for prevention treatments. Acupuncture is just wonderful!
I also have had the best luck with acupuncture and chinese herbs. It really does depend on the knowledge of the person your seeing though. I spent a crap ton of money and went to an amazing chinese medicine guy and felt bettee than i had in years. 3 times a week treatments along with tons of herbs. Unfortunately i couldn't keep up with the cost and less i went the worse i felt. Ive tried cheaper options but they didn't have the same affect on my chronic pouchitis.