I lived with Crohns disease for 13 years, had several rounds of hospital stays through the years. Then about 5 years before my surgery in 2009 was diagnosed with UC all in my rectal canal. So in Nov of 2009 after near death my doctor calls in the surgeon and they removed my colon and my rectum. I had a ileostomy for 8 weeks and then my J pouch was ready to go. It took me at least 2 full years to get back to where I could be somewhat active but still have a real problem with the fatigue. Lost 15 lbs. during the whole process and wasn't overweight. Last month I had a sigmoid flexscope done because of 2 rounds of pouchitis back to back and severe stomach pain that would not go away. Only to find that UC is present where the reconnection was made. Full of ulcers he said. So just wanted to know if anyone else had experienced anything similar as I feel like I'm lost now. Just not sure what to do? Been on Flagyl for a month now and not working very good. Any Help out there?
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I am dealing with a similar issue in that I have pouchitis in the distal pouch and an ulcer at the anastomosis connection with chronic cuffitis in the remaining cuff. Do you have ulcers in your pouch or just at the anastomosis site?
None in the pouch just at the anastomosis site.
Are you on meds? and Do you adhere to certain diet since your surgery?
Are you on meds? and Do you adhere to certain diet since your surgery?
My pouch seems to be just as active at night too. Don't sleep much and I'm sure that contributes to the fatigue.
One small ulcer at anastomosis site but pouchitis in distal pouch above anastomosis site and cuffitis that is really doing me in lately. I am trying to wean off antibiotics as I have been on them since takedown and the rectal canasa does not seem to be doing anything. Every time I try to wean from antibiotics my bothersome symptoms return. The jpouch surgery has not been a great experience for me and yes my pouch is also very active at night and I rarely get more than 4 hours of sleep uninterrupted and many nights I feel lucky to get four hours of sleep in full.