J-pouch Success Story

Glad to hear!

I think we are all success stories in our own different way!

Thank-you for doing this!!! Congratulations too! I wish more people would write about their success stories too! I plan on posting my 10 year review in October, its pretty long though lol.

Do you celebrate your surgery anniversaries??? I always celebrate step 1 and step 2.

What ointment do you use??? I use Calmospetine.

Do you use wipes too along with the Bidet???

About the Blockage thing: Drinking water before, during, and after every meal has helped me tremendously in preventing blockages and constipation. Just a little tip for you

Glad to hear success stories. Had j pouch created feb 2024 takedown July 9th 2024. Definitely having the issue of burning and pain going to bathroom. Ointments help but I also have anal fissure (since 2011) and it is definitely giving me problems. It has improved but still very painful. Use calmaseptine and have travel bidet. Any other suggestions?

@Nancydiane posted:

Glad to hear success stories. Had j pouch created feb 2024 takedown July 9th 2024. Definitely having the issue of burning and pain going to bathroom. Ointments help but I also have anal fissure (since 2011) and it is definitely giving me problems. It has improved but still very painful. Use calmaseptine and have travel bidet. Any other suggestions?

Do you use wipes when you are away from home home??? Or do you use TP???

I use wipes unless I have my own tp very soft brand and try to dab clean.

@Nancydiane posted:

I use wipes unless I have my own tp very soft brand and try to dab clean.

It says online soft TP is okay for anal fissures, just do not wipe hard it says. What kind of wipes are you using??? Fragrance free wipes are more healthy for us.

Equate fragrance free.

@Nancydiane posted:

Equate fragrance free.

Oh excellent!!! Just a fyi, the wipes are more cheaper at Target especially if you sign up with their 5% off credit card! I saved a shitload of money with them.

It looks like you are doing everything right in regards to anal care. From everything I have read, it looks like anal fissures are a symptom of Crohns disease, but also having diarrhea can cause anal fissures too. I would talk to the Surgeon or your gastro and tell them the issues you are having. I am sorry you are going through that though. I will also keep you in my prayers.

Thanks mine actually came from UC for over 30 years at the time it developed and have specialized ointment for it. It is chronic but was able to control it mostly but the frequency is what has it active again. I guess it's a matter of time for body to adjust.

@Nancydiane posted:

Thanks mine actually came from UC for over 30 years at the time it developed and have specialized ointment for it. It is chronic but was able to control it mostly but the frequency is what has it active again. I guess it's a matter of time for body to adjust.

Oh so people with UC can get anal fissures, I thought that was right but most people said it was a Crohns thing. I love this site because I learn so much from it! And I also read that diarrhea can cause anal fissures too.

Yeah your right about the adjustment part too. Our bodies can adapt to anything, that is what makes us different than trees. Trees cannot adapt to anything but we can. I hope your anal fissures heal up hon, I know it must be painful

Maybe try a warm sitz bath a couple of times each day.

That's awesome. We need more positive testimony on here.

When I was going through the bad times I was searching desperately for success stories. And when I found them I would sometimes read them several times to keep reminding myself there was light at the end of the tunnel.

@Jaydog posted:

That's awesome. We need more positive testimony on here.

When I was going through the bad times I was searching desperately for success stories. And when I found them I would sometimes read them several times to keep reminding myself there was light at the end of the tunnel.

I do that too with other things. You never had pouchitis right???

@Jaydog posted:

That's awesome. We need more positive testimony on here.

When I was going through the bad times I was searching desperately for success stories. And when I found them I would sometimes read them several times to keep reminding myself there was light at the end of the tunnel.

Exactly!  I totally understand, but seems we post primarily when we have an issue.  If everything is going fine, you're living your life so why bother to post up about it.  New J-pouchers, or people contemplating about getting one, come on forums like this one and see all these issues that we're going through and see a lopsided view.

Early on, I remember reading about a J-pouch guy that just scaled Mt. Everest...he made it seem like it was no big deal, actually made jokes about his pouch, and made me think "if he can do it, so can I".

@Arty1 posted:

Exactly!  I totally understand, but seems we post primarily when we have an issue.  If everything is going fine, you're living your life so why bother to post up about it.  New J-pouchers, or people contemplating about getting one, come on forums like this one and see all these issues that we're going through and see a lopsided view.

Early on, I remember reading about a J-pouch guy that just scaled Mt. Everest...he made it seem like it was no big deal, actually made jokes about his pouch, and made me think "if he can do it, so can I".

In the beginning when I was first on the site it was very discouraging because 99% of the people posting were talking about problems they had. But after talking with a few people and them telling me that most people who are doing good aren't on this site anymore. That made sense to me.

But yes as far as being healthy and enjoying life I am doing great. I work out every day. I'm actually doing a 5k marathon with my son next month.

@Arty1 posted:

Exactly!  I totally understand, but seems we post primarily when we have an issue.  If everything is going fine, you're living your life so why bother to post up about it.  New J-pouchers, or people contemplating about getting one, come on forums like this one and see all these issues that we're going through and see a lopsided view.

Early on, I remember reading about a J-pouch guy that just scaled Mt. Everest...he made it seem like it was no big deal, actually made jokes about his pouch, and made me think "if he can do it, so can I".

Agree with everything you said. Even ostomates climb